Then, I said to my husband, "I think I need to make a Plan B for today," and the lightbulb went on! This is our shorthand for "forget the plans - how can we make things easier?" Since I have written about this before, I will just repost it here today, thus illustrating the concept of Plan B! This article, A Plan B Day, was originally published on the ProHealth website on October 22, 2016. You can read it at the link or I will reprint it in its entirety below.
Now, back to resting and listening to my body!
A Plan B Day
Although some people with chronic illness are severely ill –
even bedridden – every day, for many of us, chronic illness is an unpredictable
rollercoaster of good days, bad days, and everything in between. In the first
years of my ME/CFS, waking up feeling horrible on a day when I had plans or
things to do caused me a great deal of stress. I often pushed myself to do
those things that “had to be done”
and ended up in even worse shape afterward. After many years of trial and
error, I finally learned (I’m a slow learner) how to deal with those kinds of
days. I call it a Plan B Day.
In my previous life, I was super-busy and always on the
move. I liked to stick with my plans (some might even say I was a bit
controlling!), and I would get upset if I couldn’t do what I wanted to do. I
may have been tired or battling a cold or extra-busy, but I convinced myself
these things had to get done today –
no other options.
Then, in 2002, ME/CFS hit. In one day, I went from can-do to
can’t-do (though it took much longer to recognize it). In those early years of
illness, I had trouble letting go of my too-high expectations of myself. If I
was planning to go to the grocery store one day and woke up feeling awful, I
was still in the mindset that I had
to go. You know what happens when you push past your limits with chronic
illness – you end up flat on your back the next day (and possibly for many days
afterward).
Now, not being able to do what I planned is a daily
occurrence. My way of coping is to call it a Plan B Day and change my attitude
entirely. Let’s say that grocery store trip is planned, and I wake up achy and
worn out, with a sore throat. I still often start thinking, “But I have to…”
but now I stop myself. Can I cobble together a meal with what’s in the house
already? Can my husband stop after work to pick up what we need? I make myself
relax, calm down, and think through the alternates.
Here’s how you can adopt a Plan B attitude on those days
when you just can’t (or shouldn’t) do what you planned:
Take a Mental Inventory
– Put the brakes on that “must-do” mentality and really assess how are you
feeling. How bad are your symptoms? Sometimes I don’t notice how severe they
are until I slow down and make myself take notice. Consider what your true
capabilities are today and what you’ve learned in the past from pushing
yourself when you feel this way. Don’t panic – just tell yourself it’s a Plan B
Day.
Revisit Your To-Do
List – Look at what you had planned to do today. What is really essential and what can wait? Can you pull together a meal without going to
the store? Do you have to go to the post office or bank today? Pare your list down to what absolutely cannot be put off
(like picking up your kids from school, for instance!) – only the truly urgent
things. Be honest & drop that “must get it done today” mentality.
Delegate & Revise
– What is your Plan B? For those things that must be done today, who can you delegate to? Can you ask a friend
or family member for help? Can it be postponed? Is there another way to do it
without the exertion (maybe an e-mail or phone call instead of going out, for
instance)? Look in the freezer to see what your meal options are without going to
the store. Text your partner or a friend to see if they can help. It’s hard for
many of us to ask for help, but the truth is that most of our friends and
family members would love to help and just don’t know what we need.
Drop the Guilt and
Rest – Now that you have your Plan B, do those few things you must (from
the couch or bed!) to postpone and enlist help and then forget about it all. Let
your Plan B do its job. Rest, take care of yourself, and give your body a
chance to recover. Stress and worry will only make you sicker, so let it all go
and focus on recuperating. Indulge in a good book, a funny movie, or
binge-watching your favorite TV show to take your mind off the to-do’s and
signal to your body that it is time to rest.
Once I adopted the Plan B attitude, I was surprised to find
how few things are really, truly critical to get done today. It required a complete mindset change from my previous
approach, but I find that using the phrase Plan B Day reminds me to slow down
and look for alternatives instead of panicking or pushing myself. It’s a
constant struggle to drop those expectations and take care of myself, but I
easily see the results – feeling better the next day instead of worse or having
the energy to spend time with my family at the end of the day instead of being
totally depleted. And, if you wake up tomorrow still feeling awful, there’s
always Plan C.
Thank you for posting even the plan B. Sounds completely sensible. Had a plan B week too and food stocks to last a week to a month for emergency if need be. Although an embarrassing bit is plan B bathing. Need an accessible bathroom were even sitting anywhere but the toilet would be possible, but I am planning for hubby to eventually have a home he could wheelchair in as he needs one now. Finding the really hard bit in plan B recovery to work with deadlines. Me and deadlines, we don't get along. Even really difficult with specialists where you have to wait 3-6months for an appointment window. I am amazed you manage the articles you do write, but then I am still learning the basics and found your OI articles immensely helpful to identify & help track issues that GP is now really concerned about. Next step treating them. Fingers crossed for only a 3 month specialist wait.
ReplyDeleteThanks - glad you found this post helpful & could relate.
DeleteGuessing you are in the UK with those specialist wait times! So sorry - you shouldn't have to wait to see a doctor - hope your upcoming visit goes well & you are able to try some treatments. Glad my OI articles are helping. Hopefully, I will feel better & be able to write the part 2, Challenges in Treating OI, this week.
Oh, by the way, I am only able to write now, thanks to many, many treatments that have helped me to improve. In the early years of my illness, even though I started trying to be a freelance writer before I got sick, I could hardly write anything at all.
Not sure if you have seen my overall summary of the treatments that have helped the most (though OI is an excellent place to start):
http://livewithcfs.blogspot.com/p/mecfs-treatments.html