Wow, that was one heckuva crash this time. I was pretty much bed-ridden for a full week. I'm finally feeling better and back on my feet...just in time for our vacation! We're heading out on our annual summer road trip, driving to Oklahoma to visit my husband's family. We're taking our camper along and making lots of fun stops along the way. We can't wait! Now we just need to finish getting packed...
I'll resume writing when we return.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Tuesday, June 13, 2006
Thursday, June 08, 2006
CRASH
I've been severely crashed all week. I almost feel like Rip Van Winkle, except that I haven't woken up completely yet.
This week was supposed to be busy and fun - the last week of school, time to welcome summer. I have a long list of things I wanted to do to get ready for our vacation next week, get gifts together for Father's Day, and wrap up the school year. Instead, I've been in bed for days. I don't feel much better today, but I couldn't stand it anymore. I took a shower and am attempting to tap out a short blog on my laptop.
How can the CDC use words like Fatigue and (my favorite) Malaise to describe this complete debilitation? When it gets this bad, I am a prisoner of my body. I am too weak to walk, sitting up makes me sicker, and my throat hurts horribly. All those medicines and supplements I take seem to do nothing when I crash. I really hate this helpless feeling. Nothing to do but lie down, rest, and wait.
I've reached the end of my tiny bit of stamina. Time to close the laptop and lie down flat again. I just keep reminding myself that it will lift soon.
This week was supposed to be busy and fun - the last week of school, time to welcome summer. I have a long list of things I wanted to do to get ready for our vacation next week, get gifts together for Father's Day, and wrap up the school year. Instead, I've been in bed for days. I don't feel much better today, but I couldn't stand it anymore. I took a shower and am attempting to tap out a short blog on my laptop.
How can the CDC use words like Fatigue and (my favorite) Malaise to describe this complete debilitation? When it gets this bad, I am a prisoner of my body. I am too weak to walk, sitting up makes me sicker, and my throat hurts horribly. All those medicines and supplements I take seem to do nothing when I crash. I really hate this helpless feeling. Nothing to do but lie down, rest, and wait.
I've reached the end of my tiny bit of stamina. Time to close the laptop and lie down flat again. I just keep reminding myself that it will lift soon.
Thursday, June 01, 2006
Exciting New Viral Evidence
It just makes my day to check my e-mail and find exciting new breakthroughs in CFIDS research!
They've identified a new virus that may be behind CFS. As a bonus, they think it's also the cause of MS, so CFS is linked to a "real", well-known disease in the news report.
Check it out:
Potential Animal (Zoonotic) Virus Identified in Patients with Chronic Fatigue Syndrome, Multiple Sclerosis and Epilepsy
They've identified a new virus that may be behind CFS. As a bonus, they think it's also the cause of MS, so CFS is linked to a "real", well-known disease in the news report.
Check it out:
Potential Animal (Zoonotic) Virus Identified in Patients with Chronic Fatigue Syndrome, Multiple Sclerosis and Epilepsy
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