Spring Cleaning for Your Spirit

I posted a new video, Spring Cleaning for Your Spirit, based on a chapter from my book, Finding a New Normal: Living Your Best Life with Chronic Illness, that is useful any time of year but feels particularly relevant in spring.

It's all about replacing negative feelings with healthier feelings: “Think of it as a mental health scrub: clearing out the old “dirt” in our minds, like resentment, envy, anger & loneliness, and replacing them with healthier feelings, like joy & connection.”

I don't approach this like a big, difficult project but propose small, practical tips for moving your life of chronic illness toward one that is healthier emotionally, since our mental health has a direct effect on our physical health. To be clear, this isn't "think positive and make yourself well" kind of crap, which I detest! It's small, simple steps that any of us can take each day to try to address those darker feelings and bring more joy and connection into our lives.

You can watch the 13-minute video on YouTube or I will include it below:

On a personal note, I haven't been posting much lately because I have been struggling with my own health. My usual "winter relapse" lasted into March this year, and after about a month of gradually feeling better, another surprise relapse hit me last week. I usually do quite well in spring and summer--last year, I did not have a single crash day from March through August!--so this is particularly demoralizing. I'm supposed to be going away with my mom this weekend for a book event we attend every year in Vermont, but I had to cancel. I've restarted microdosing tirzepatide (a GLP-1 agonist) in the hope that it will bring me back to a better level of functioning, as it did this past winter. And, since immune activation is my biggest issue in recent years, I have been reading some of the latest research on that topic ... I promise to share with you what I learn!

 

Do you have ways of bringing more joy into your life?

Please share in the comments below.

You can also connect with me on Facebook, Instagram, and Twitter.

Gorgeous Fall Foliage & Nature Video

As I mentioned in my last post, I am trying a new experimental treatment for ME/CFS, long-COVID, and autoimmune diseases. I'm working on editing a month-long vlog about how it affects me. The short answer is that it is helping!! Hurray! I'm doing much better than I normally am in November, when I'm usually in the midst of a months-long seasonal relapse and living life horizontally. I've been busy, active, and productive with very good energy and only mild immune symptoms (flu-like aches). I even managed TWO social events with friends last week! I hope to have that video finished and posted on my YouTube channel before next week.

In the meantime, I wanted to share another video, from our last camping trip of the season. In my book, there is a chapter about The Restorative Power of Nature (you can read an earlier version of that chapter here on the blog). The science is really amazing, showing that spending time in nature helps to improve both mental and physical health (including immune function!). Those studies also show that when you can't get outside, even just looking at pictures of nature has measurable health benefits.

So, though I couldn't bring you all along on our trip, I can share this 15-minute video that features vibrant fall foliage, peaceful sunsets over the water, birds, and other beautiful, tranquil nature scenes. You can watch it on YouTube or I'll include it below:

 Enjoy watching, and I'll be back soon with more details on how the new treatment is helping me.

How do you enjoy nature? 

 

Share your experiences (or any questions) in the comments below.

 

You can also connect with me on Facebook and Twitter and Instagram. 

Chronic Illness Vlog: A Week in My Life During a Crash (Plus, Nature!)

I've been stuck in a mysterious relapse of my ME/CFS for the past month. I've had flu-like aches every day. I thought that--like last fall--it was due to yeast overgrowth flaring up again, but stronger antifungals and a stricter diet aren't having the effect I'd hoped. I'm a little better, but still achy. Since that is an immune symptom that is a warning sign for me, I have been lying low, not going out much, no walks, and spending a lot of time on the couch ... and in my reclining chair on my deck.

I made a vlog last week that gives you a peek into my life with chronic illness during a down week (though, admittedly, not as bad as in the past for most days last week). I talk about what treatments have worked in the past and what I am trying now. And I included some nature footage, so you can enjoy the sights and sounds of nature, too. You can watch it on YouTube or here:

And if you enjoy nature--or want to improve your health!--I will also include my recent outdoor vlog from our last camping trip of the season, at Trap Pond State Park in Delaware, with beautiful fall foliage. Enjoy the peaceful, soothing videos and photos on YouTube or here:

Did you know that scientific research shows that just looking at pictures or videos of nature has measurable positive effects on both mental and physical health? It even improves immune function! So, enjoy this brief respite in nature. Then, open your window or go outside, if you can manage it, to experience nature in your own backyard (or porch or patio or balcony). I'm in my reclining chair on the deck as I type this. It always calms me and makes me feel better.

How was YOUR week?

And how do you enjoy nature?

Please let me know in the comments below.

You can also connect with me on Facebook and Twitter and Instagram.

Weekly Inspiration: Books, TV, and Movies to Tickle Your Funny Bone

Hey, chronic illness spoonie friends! Earlier today, I was updating and sharing an older post of mine from 2019, Weekly Inspiration: Laugh!, when I realized it's been a long time since I've written a new Weekly Inspiration post and I could really use some laughs right now. 

After feeling the best I have felt in years during the first six months of this year (not a single crash day!), getting COVID in July, and slowly crawling my way back from that over the next three months, I was doing pretty well by September and back to enjoying some camping trips with my husband. But for the past three weeks, I've had flu-like aches every day, which tells me my immune system is overreacting to something, most likely a flare-up of yeast overgrowth again. I've gone back to a super-strict diet with almost zero carbs to try to get control of it again, but between that and the state of the outside world, I'm feeling pretty discouraged. 

The prescription? Laughter! As I explained in that older post, laughter has very real physical health benefits ... and it just makes you feel good! So check out the hilarious video clips and funny TV, movie, and book recommendations I made in that old post. And here are some more current recommendations for TV shows, movies, and books that will tickle your funny bone and make you LOL.

 

Funny TV Shows

My husband isn't big on straight-up comedies on TV (though my sons and I love to laugh over episodes of Bob's Burgers or The Office), but we both love to watch TV shows that combine a great sense of humor with drama or suspense. Here are some of our favorites, reviewed in the past two years (links to my reviews with trailers), that make us laugh out loud:

The Diplomat - It's the perfect time time to remind you of this outstanding show that has it all because it just returned for its second season on Netflix. It's got loads of suspense and international intrigue, but it's also so hilarious that we often had to pause and go back a bit because we were laughing so hard we missed a few lines! Great writing & acting.

Somebody Somewhere - This HBO Max show is so great that we watched all three seasons in record time. It's laugh-out-loud funny, but with great emotional depth and plenty of heart. Not for the easily offended--nothing is off-limits in this show!

Shrinking - Another wonderful show just back for its second season, on Apple TV. Starring Jason Segel and Harrison Ford as therapists who work in the same office. It's another show that delves into deep issues like grief but with a great sense of humor. It shares some creative DNA with Ted Lasso, and it shows with the same blend of heartwarming drama and laugh-out-loud moments. If you didn't think Harrison Ford was funny, wait till you see him in this role!

Poker Face - This fun, twisty mystery series is built around its main character, played by Natasha Lyonne, so besides suspense, you also get plenty of clever wit. On Peacock - we're still waiting for season 2!

 

Funny Movies

Again, my husband isn't much for straight-up silly comedies (and honestly, neither am I), so our favorite movies that make us laugh always have other elements. Here are some we've enjoyed that were funny:

Hit Man - this 2024 Netflix movies defies categorization: it's kind of a romantic thriller comedy. It's based on a true story of a man who helped the police department by occasionally pretending to be a hit man, so they could arrest whoever hired him. Twisty, suspenseful, action-packed, and funny. Just a lot of fun!

American Fiction - Nominated for a Best Picture Oscar and with one of the highest ratings on Rotten Tomatoes, we loved this movie! It's very funny, but it's also poignant, heartwarming, and thoughtful. Highly recommended.
 

Flora and Son - This heartwarming, funny movie about a mother and son connecting through music is uplifting and delightful. It will leave you smiling.

 

Funny Books

Apparently, I haven't been reading many funny books lately, based on my recent reviews. I love a book with a sense of humor, but my favorites are often books that will make me both laugh and cry ... and that's not really my purpose here. So, I'll include some recent reads but also some from a bit further back that are guaranteed to make you laugh. And definitely check out that old post because it did include some great books.

Why We Read: On Bookworms, Libraries, and Just One More Page Before Lights Out by Shannon Reed - In this funny, comforting, informative memoir, the author talks about her experiences reading and teaching literature in both high school and college. I was often nodding along or laughing out loud.

Remarkably Bright Creatures by Shelby Van Pelt - This heartwarming story is about connections, loss, and family. It has great characters and an excellent sense of humor.

The Verifiers by Jane Pek - This debut novel is a fun, suspenseful mystery with a great sense of humor. And book two, The Rivals, just came out!

 

What TV shows, movies, and books make YOU laugh?

I'd love to hear about them!

Please share your own recommendations in the comments below.

You can also connect with me on Facebook and Twitter and Instagram.

The Joys of Fall

I thought I'd combine a quick personal update with sharing my latest camping vlog. This past month has been so busy here! I love fall with the cooler weather (ME/CFS has made me so heat intolerant) and brilliant foliage, but it seems to be flying by. We did manage a nice, relaxing 9-day camping trip at the end of September, with stops in two beautiful state parks in New York (check out my vlog from the trip) to make up for having to cancel our July/August vacation due to my slow recovery from COVID. 

Kayaking on beautiful Gilbert Lake in NY

My husband and I celebrated our 35th anniversary at the end of September with a rare dinner out, though since getting COVID again, I am even more nervous about restaurants. For my husband's 70th birthday at the start of October, I planned a big surprise: a golf weekend in nearby Maryland for him, our son, his local golfing friend, and his friend from high school who flew up from Texas for the occasion! We managed to surprise my husband, and they had a great time golfing within view of the Chesapeake Bay and staying at the Airbnb I rented. The following week, his Texas friend's wife flew up to join him, and they spent the week here. She and I had never met before, but we had so much in common! What an unexpected joy to make a new friend. I was worried the week would be too much for me, but they wanted to see the East Coast and traveled to the beach, the mountains, Philadelphia, and New York City. And when they were here, we very much enjoyed their company.

Out on the deck with our Texas friends!

 

They left on Saturday afternoon and by noon on Sunday, we had our camper packed up and ready to go! I didn't want October (my favorite month) to go by without any camping, so we squeezed in a mini 2-day getaway to Killens Pond State Park, just over an hour away from us here in Delaware. It was a short trip but SO relaxing! We spent a lot of time in our lounge chairs, reading, enjoying the view, and looking at the campfire. Just the break and time in nature we needed. You can watch my short vlog from the trip on YouTube or below:

Back home, we met up with our son and his girlfriend last weekend to visit a local farm market for pumpkins and hot, fresh donuts, our annual tradition. (After zero sugar or flour for the past 10 months due to chronic yeast overgrowth, I even treated myself to a half donut!) Afterward, we went to visit their new apartment for the first time; our son moved out of our house in September.

Our fall tradition!

This week, for reasons I don't understand, I was pretty badly crashed on Monday and Tuesday, for the first time since I got past the worst of COVID. I felt better today--not quite up to where I have been but able to get out for a doctor's appointment, a tiny 10-minute walk among stunning fall foliage, and my neighborhood book group.

Fall colors

 

And now, I am out on our back deck, enjoying the sunshine and warm weather. I've spent a lot of time in this reclining chair out here this week!

My happy place on our back deck in the reclining chair!

Overall, aside from this brief crash this week, I am almost back to my pre-COVID baseline. The first six months of this year were the best I've had in several years, so my energy and stamina aren't completely back to that yet but are getting close.

How are you doing?

Do you enjoy fall? If not, what's YOUR favorite season?

Let me know in the comments below.

You can also connect with me on Facebook and Twitter and Instagram.

Relaxing & Peaceful Nature Videos

Oh, my gosh--I can't believe I haven't written a new post here in three weeks! I did send a newsletter out, so that's a win. Sorry about the gap in posts. Life's been very hectic, and my energy and stamina are still really low after getting COVID in early July. I am struggling to keep up with everything (and not doing very well at that). I have some new treatments to try after a phone appointment with my doctor this week to review recent labs, so I'll fill you in a couple of weeks on what they are and if they're helping.

In the past month, we traveled to see our son for his 30th birthday (highlight: he's working full-time and says he feels the best he's ever felt in his 20 years with ME/CFS!), attended a graduation party, took a 4-day camping trip, and just last weekend, attended a wedding about five hours from here. The wedding weekend was wonderful, filled with our closest friends, but exhausting, as you can imagine! This week was two doctor's appointments, a book group meeting, and a Zoom meeting with our local support group. We are currently packing for another, longer camping trip, and I can barely keep my eyes open!

So, I thought I would just quickly share the vlog I made from that last camping trip--it was a very relaxing few days, and the vlog includes photos and videos of nature--lakes, waterfalls, birds, and more. It's all very serene and peaceful. Remember, as I explained in my book (and here on the blog), even just looking at pictures of nature is beneficial to your physical and mental health, so enjoy!

You can watch the video on YouTube or below:

I'm really wiped out today, but once we leave on this trip, I'm looking forward to some complete downtime, with nothing to do but lie in my lounge chair and read or stare into a campfire and be surrounded by nature.

I hope you enjoy the vicarious camping trip in the video!

How do YOU enjoy nature?

Let me know in the comments below.

You can also connect with me on Facebook and Twitter and Instagram.

Just for Fun: A Bit of Nostalgia!

My latest video has absolutely nothing to do with chronic illness (which is nice, for a change!).

If you grew up in the 60's, 70's, or 80's, you'll love this nostalgia-filled walk down memory lane, including books, movies, music, cartoons, and more! I answer some questions for the Old School Tag, created by another YouTuber, and I had so much fun with it--plus a bit of show & tell!

You can watch the video on YouTube or I'll also include it here:

I had a blast making this video - I hope you enjoy watching it!

Tell me about YOUR favorite things from childhood!

Please leave a comment below.

You can also connect with me on Facebook and Twitter.

Spring Camping Vacation Vlog

The blog has been quiet because we were on vacation last week! I not only had no internet; we didn't even have cell service much of the time! We were truly off-the-grid, and it was very relaxing. I put together a travel vlog, loaded with videos and photos of camping, hiking, kayaking, reading, and lots of relaxing! Plus lots of great footage of peaceful nature scenes, to help YOU enjoy the restorative effects of nature, too.

We drove with our pop-up camper down to Virginia (about a day's drive south, so perfect for April) and visited two beautiful state parks there: Holliday lake State Park and Fairy Stone State Park. On our way back, we spent the weekend on Smith Mountain Lake with my college suitemate and her husband (also a college friend) and really enjoyed both the gorgeous setting and the company. Nothing like old friends!

You can watch the vlog on YouTube or I''l insert it below - be sure to turn up your volume to enjoy the sounds of birdsong, bubbling streams, and trees swaying in the wind:

As you can see, I am still feeling really great! As long as I get my 9 hours of sleep a night and my afternoon nap, I can be quite active during the day (9000 steps one day on this trip - a new personal record!). And I have still not crashed even once since the beginning of the year. For details on why,  check out my 2023 Year in Review post (scroll down to "What Helped").

Vacationing this way--in our little camper, our home away from home, on our own schedule--allows me to relax and enjoy a getaway.

Are you able to travel at all or enjoy a vacation?

What helps you?

Please leave a comment below.

You can also connect with me on Facebook and Twitter.

Chronic Illness Vlog 4-1-24: Out in the World, Home Improvements & Easter

I recorded a chronic illness vlog last week, full of videos (and some photos) that show an honest view of my life with ME/CFS and Lyme. And these days, it's a pretty good life!

I am still doing really well and have been quite active, as you can see in the video. I've been able to see friends, go shopping (!), run errands, and even begin to work on our house a little (baby steps!). Small steps toward decluttering feel so good after feeling so helpless the past few years; it feels great to be productive again. Last week, I also went to the movies with my husband and enjoyed a weekend trip to visit family for Easter. This visit was a far cry from our last trip, for Thanksgiving in November, when I was so horribly sick that I needed a second nap between dinner and dessert.

As I've mentioned here before, my recent big improvements came from treating chronic yeast overgrowth (which makes me feel awful). I thought it was already well-controlled ... but I was wrong! It took all of the treatments in my Treating Yeast Overgrowth post, plus a major change to my diet at the beginning of the year. The other factor was effectively treating thyroid dysfunction (hypothyroidism, in my case). My doctor and I worked on that for over a year, but I couldn't see the full improvement with the yeast overgrowth making everything worse. 

That's the way it is with these complex immune disorders; sometimes you can't see the benefits of one treatment until you tackle another aspect of the disease. I have not experienced a single crash from over-exertion (or for any reason) yet in 2024, which feels like a miracle. I'm feeling the best I have in several years. Keep in mind that prior to this, I also treated many other aspects of the disease (see Effective Treatments, newly updated). It's like playing whack-a-mole!

You can watch last week's vlog on Youtube or right here, below:

How was YOUR week?

How are you doing?

Please leave a comment below.

You can also connect with me on Facebook and Twitter.

Celebrate Mardi Gras at Home, the Easy Way!

It's Mardi Gras Day! We used to live in New Orleans, so this is a major holiday at our house, as you may have heard in my video, Celebrate Everything, Big and Small, which includes loads of tips for celebrating with minimal effort. We usually celebrate on Saturday and again on Tuesday. Before the pandemic, we had an annual party with all the food, music, etc. on Saturday. With my immune issues, it's now a small celebration with our oldest friends, who lived in New Orleans when we did. We enjoyed takeout from a favorite local New Orleans restaurant (a husband and wife team who were both chefs in New Orleans, under two of the top chefs there!), plus lots of shrimp. Today, Mardi Gras day, we will finish off the season with our annual tradition of Popeye's at that same friends' house (yes, Popeye's is authentic Louisiana food). And, of course, we've decorated for the occasion, and I'm wearing purple, green, and gold with my beads on!

 

Want to join the fun? Here is a collection of ways to celebrate Mardi Gras, New Orleans, and Louisiana today...including food, recipes, travel tips, movies & TV shows, and, of course, some great books! You can also check out my column in Shelf Awareness from last year that features books about and set in New Orleans, Armchair Travel: Destination New Orleans. And if you prefer a video, check out my Recommendations for Mardi Gras Reathathon: Books, Movies, and TV Shows.

 

Great Adult Books Set In/About Louisiana (additional titles in my article linked above):

• The Crowning Glory of Calla Lily Ponder by Rebecca Wells, author of Divine Secrets of the Ya-Ya Sisterhood - I listened to Calla Lily's story on audio and laughed out loud & bawled my eyes out! It takes place in southern Louisiana, with plenty of local color.
• Gumbo Tales: Finding My Place at the New Orleans Table by Sara Roahen - I loved this memoir about the food, history, people, and unique culture of New Orleans.
• Trail of Crumbs: Food, Love, and the Search for Home by Kim Sunée - although this food-focused memoir covers everyplace from Sweden to France to Korea, the author grew up in New Orleans, where the food culture impacted the rest of her life.
• Burn by Nevada Barr - part of her Anna Pigeon series, about a National Park ranger, this one is set in the French Quarter (where there's a National Historic Park). I haven't read it yet, but I plan to this year!
• Mardi Gras Mourning by Julie Smith - I first read this back in the 90's and am rereading it now for the Mardi Gras Readathon on Booktube. It's a classic detective novel, set in New Orleans during Mardi Gras, so the setting and atmosphere are great!
• The Book of Lost Friends by Lisa Wingate - outstanding historical fiction set in Loiuisiana, with a dual timeline in 1863 and 1987. It made my list of Top Ten Audios in 2023! 
• The Vanishing Half by Brit Bennett is another excellent dual timeline historical novel, about twin sisters born in Louisiana. One moves to New Orleans and the other twin decides to "pass" as white and lives a very different life.
• Horse by Geraldine Brooks - in this historical novel from one of my favorite authors, some of the story takes place in 1800's Louisiana.
  

Middle-Grade and Teen/YA Books Set In/About Louisiana:

• Ruined by Paula Morris - a teen/YA mystery/ghost story set in New Orleans (the perfect setting for a ghost story!)
• The Freedom Maze by Delia Sherman - a compelling middle-grade historical fiction adventure (with a touch of time travel), where a girl from 1960 travels back to 1860 Louisiana
• Zane and the Hurricane by Rodman Philbrick - a middle-grade novel about Hurricane Katrina - powerful and gripping
• Out of the Easy by Ruta Sepetys - most people are familiar with her two YA novels set during WWII (Between Shades of Gray and Salt to the Sea), but this historical novel is set in New Orleans in 1950

Movies & TV Shows

• Chef  - a wonderful, uplifting movie about a family food truck that travels from Miami to LA, with a stop in New Orleans, of course! My favorite movie of the year in 2015.
• NCIS: New Orleans - though it's a crime show, it includes many scenes of New Orleans, mention of local restaurants and landmarks, and other local tidbits, plus some great local music. They usually do a Mardi Gras episode once a season, for extra fun. It's streaming on Paramount Plus (which used to be CBS All Access).
• Treme - we LOVED this HBO show, which we were somehow able to watch on cable at one point. You can see it now streaming on HBO Max or Hulu.
  
• You can also check out some classic movies and modern classics with New Orleans settings, like A Streetcar Named Desire and The Big Easy.
• Or tune in to watch parades and other scenes in New Orleans streaming live (or if you missed the parades, some great videos) at www.mardigras.com.

One of the locals in Louisiana

Travel
All this talk of Louisiana making you want to visit? I have written articles about visiting New Orleans  and Exploring Cajun Country - check them out and start planning your trip (plenty of food recommendations in both!). I'm certainly ready to go back!

Crawfish!

Eat, Drink, and Be Merry!
Notice that many of the books and movies about Louisiana are focused on FOOD? Yes, Louisiana - and especially New Orleans - is known for its amazing, unique food. This blog post on how to celebrate Mardi Gras includes my own recipes for some classic Louisiana dishes, plus food you can grab locally today and webcams where you can vicariously experience Mardi Gras - there are plenty of suggestions in this post that you can still manage to do between now and Tuesday. Or save it for later if you like - we eat this food all year round. 

NOTE that Zapp's potato chips - which you absolutely MUST try) have been bought out by PA-chip maker Utz, so you don't have to get them by mail-order anymore. We can now find them in local stores like Wawa here in Delaware or ordered on Amazon (Cajun Crawtator and Cajun Dill are the best flavors.)

Laissez les bon temps rouler!

My 2023 In Review: Chronic Illness Rollercoaster!

Chronic Illness is often said to be a rollercoaster (in fact, Riding the Chronic Illness Rollercoaster is the name of a chapter in my book!), and that was definitely true for me last year, with plenty of ups and downs in my life with ME/CFS and Lyme. I'm a little late with my usual year-end wrap-up (and only just set my goals for the new year!), but that's another fact of life when you have chronic illness; we make accommodations. 

NOTE: I like data and am an analytical person. For details on how I simply track how I feel on a calendar, check out my post, My Progress in 2020 and Goals for 2021 and scroll down to My Health in 2020 and below that, the section called "How Do I Know This?" Or you can watch my short video, Chronic Illness: Tracking How I Feel, Symptoms, and Treatments. I use a 1 to 5 rating, where 1 is good and 5 is mostly bedridden. I also rate my exertion each day on a 1 to 5 scale. And for details on the process I use for goals, which focuses on taking very small steps toward what I want in my life, see my video, Setting Goals When Chronically Ill (Improve Your Life in Tiny Steps).

 

2023 in Review: My Health - the Data

Average How I Felt = 2.5 (1 is good; 5 is bad)

• 13% better than 2022, which was my worst year in 21 years of chronic illness.
• My best months were 2.2, and my worst was 3.4.
  
• Things have been a lot worse for me since 2020 (see my Relapses & Recoveries post), so this was a move in the right direction!
  

Average % crashed = 15% (meaning I was couchbound/bedridden 15% of the time)

• Crashed = a 4 or 5 on my scale, unable to function, stuck in bed or lying on the couch.
  
• 12% better than 2022, which was a low point.
• The average doesn't tell the whole story because there were some highs and lows.
  
• My best months were April and June, with only 3% crashed, but in my worst month, November, I was crashed and nonfunctional 50% of the time.
  

Average exertion = 3.8 (on a scale of 1 to 5)

• 8% better than 2022.
  
• My best months were April and October, with 4.3 average exertion, and my worst month was November, with just 2.8--I spent much of that month lying on the couch.
  
• I think my exertion level looks better than I actually felt; I know that I was pushing myself too hard and not resting enough during some of those early crash months. I finally gave in and rested in November.

  

What Made Things Worse Last Year:

• Not listening to my body and resting enough when I crashed.
• Yeast Overgrowth - this was definitely my biggest issue in 2023:
• As with many people with ME/CFS, I suffer from chronic yeast overgrowth due to the specific kind of immune dysfunction in this disease.
• I made the mistake--over and over!--of assuming it was under control because of all the treatments I routinely take/do that normally work effectively. This kept me from recognizing (and treating) the underling causes of my repeated crashes.
• My diet. I was calling my diet Paleo, but honestly, I wasn't sticking it to it very strictly by last year. This was a huge contributing factor. If I had actually stuck to a strict Paleo diet, the yeast overgrowth probably wouldn't have gotten so much worse.
  
• A short round of steroids (prednisone for five days) in November. Since the issue was actually yeast overgrowth, suppressing my immune system was not a good idea!
  

 

What Helped Me Last Year:

I tried eight new treatments (or adjustments to old treatments) last year that helped me. Below are the changes that helped me the most (some things that I tried, I'm not sure yet if they are helping or not).

• Normalizing my thyroid function. I spent a full year working with my primary care doctor on this, getting thyroid labs every two months, adjusting my meds, waiting another two months, repeat. All that effort, patience, and persistence paid off, and I am starting 2024 with my thyroid working very well! Besides increased energy, less fatigue, and more stamina, I lost 20 pounds over the past year--back to pre-illness weight! It's been eye-opening to see what a difference this makes. I wrote all about it in Diagnosing and Treating Thyroid Dysfunction in ME/CFS and Long-COVID.
• Changing my diet. In the very last two weeks of the year, I drastically changed my diet, once my functional medicine specialist pointed out to me that I still had thrush in my mouth, even with all the anti-yeast treatments I was on. I took her advice to "starve the yeast" by switching to a no-carbs Carnivore Diet. It is what it sounds like: meat, fish, eggs, butter, and no carbs at all. It worked, and by the first days of January, I was feeling the best I have felt in many years! Here's my video about my first month on the Carnivore Diet. I am currently about 97-98% Carnivore; I occasionally have a few bites of non-yeast-encouraging veggies or avocado. I am still feeling great (for me!). I've been seeing friends, taking daily walks, and even helping a friend with her move. Today, I went shopping for clothes for the first time in ages (my clothes are all too big now), and it is just such a thrill to be back out in the world!

 

Other Highs and Lows of 2023 for Me:

Lows: Obviously, with all of 2023's health issues and months spent on the couch, many things just didn't get done last year:

• Not enough time with local friends.
• Very little writing outside of my two blogs and no magazine articles.
• No energy for our home--decluttering is getting urgent!
• Given my poor health many months, I was not able to walk as much as I like or keep up even my tiny on-the-floor strengthening routines. 

Highs: But as always, though my year seemed awful when I was stuck on the couch in November and December, when I look back, I see some wonderful highlights:

My husband and I enjoyed 3 relaxing week-long camping vacations: to Virginia state parks in April, to the Catskills in June, and to the Virginia mountains in October for stunning fall foliage! When we travel with our camper, it is very easy and low-key. (links are to my travel vlog videos, where you can see some of the beautiful natural surroundings we enjoyed).

We enjoyed three weekends with our adult sons and their girlfriends, one at home for Father's Day, one camping in Pennsylvania and one at a rental on a lake in New Jersey. We cherish that quiet, laid-back, fun time with them!

My childhood best friend, Michelle, came to visit me in July, and we enjoyed a wonderful weekend together, reminiscing and making new memories!

In September, I finally got to meet in person my friend from across the world! Annie and her husband were visiting from Australia, and they made time in their busy schedule to meet up with us. Annie and I met online over 10 years ago, in the group I started for Parents of Kids and Teens with ME/CFS and Related Illnesses. We both had sick kids, and we supported each other and bonded. Annie later helped me run the group, and we've stayed in touch even though our "kids" are now grown up (and both doing quite well). It was such a treat to meet in person!

I stuck with my new goal to spend time outside every day and so enjoyed that extra time in nature! Given the state of my health, often that time was spent lying in a reclining chair on our deck or very slowly walking around the little cul-de-sac in front of our house, but the new habit really enriched my life. If you'd like to do the same, Join Me to Notice and Enjoy Nature More in 2024! with my #nature365 project.

 

So, that was my 2023.

How was last year for you?

 

What small joys did you experience?

 

What treatments help you?

 

Share your experiences (or any questions) in the comments below.

 

Join Me to Notice & Enjoy Nature More in 2024!

In 2023, I created #sky365 to use on social media, and I posted a photo of the sky (almost) every day. Last year was a rough one for me health-wise, but this very simple habit helped me to get outside at least once a day, reminded me to look up, and inspired me to find beauty and joy, even on my worst days.

This year, I am using #nature365 for the same reasons, and I would love for you to join me! You don't have to be a great photographer. The idea is simply to snap a quick photo each day of anything in the natural world: a tree, flowers, birds, or yes, the sky! Then share it on social media using #nature365, so the rest of us can enjoy it, too. Even photos taken from your window--or even of a houseplant--count. It's very flexible, but the purpose is to help us all pay more attention to the outside world and notice and appreciate nature wherever we find it.

Research shows that nature has amazing positive effects on both our physical and mental health, even with just 5 minutes of time or even just looking at pictures of nature. I explain all this in more detail and provide lots of easy tips for enjoying nature, even when you are severely limited, in my book and in this video, Get Out! Nature Improves Health.

So join me and post your #nature365 pics!

You can connect with me on Facebook and Twitter, where I will try to post a nature photo everyday, and you can reply with your own. 

Or post on whatever social media platform you prefer (I am determined to finally get on Instagram this year)

In the meantime, here are a few of my favorite #sky365 photos from last year - remember even just looking at these photos improves your health! Click on them to enlarge:

Holiday Tips, Support, and Fun for the Chronically Ill

During this busy season, I am sharing here a wide range of holiday tips, support, and ideas for fun from past posts and past years, to help you through this coming week of Christmas and New Year's celebrations.

[I haven't been posting much here recently because I am still stuck in this awful relapse that began in mid-October. I've spent months with constant flu-like aches, lying on the couch, so my life has been very limited. I've realized that yeast overgrowth/candida is still at the root of this latest relapse, so I am on an extremely strict diet now: pretty much just meat, fish, and seafood, plus some cruciferous vegetables. I'm feeling better, my energy is better (thanks to working all year on normalizing thyroid function), but I still have thrush on my tongue and flu-like aches. Fingers crossed this clears up by Sunday so I can enjoy Christmas with my family!]

First up, the part of the holidays I struggle with the most (and many of you, too, from your posts and comments) is family relationships, which can be challenging when you're chronically ill. Those challenges multiply with the stresses and expectations of the holiday season. That's why I wrote Managing Family Relationships - Holidays and Beyond, which is excerpted from my book. This article/chapter provides practical tips to help you not only manage relationships but even enjoy the holiday season, in your own way and within your own limits.

Two years ago, I collected Chronic Illness Tips and Support (and Fun!) from other chronic illness bloggers and writers. Check out that round-up of support, practical advice, and some time-out fun, too. There is a lot of collective wisdom in the large chronic illness community!

And here is another round-up from other chronic illness bloggers: Chronically Ill Holiday Gifts and Tips, with some great posts from other bloggers about coping, planning and preparation, gift ideas, and support.

 I posted two Gift Guides here on my own blog this month: Chronic Illness Holiday Gift Guide ( I got some of these for my step-mom who's dealing with chronic pain) and Gifts Created by and for Spoonies. It might be too late to buy gifts for others, but you can put your new gift cards to good use! 

Finally, when you just need to take a break from all the activity and people and noise, check out Movies and TV for the Holidays (or Not!), my own collection for the season. I included some of my favorite holiday movies, old and new, and some outstanding, uplifting non-holiday movies and TV shows, if you just need to escape for a bit. And I will add one more holiday movie to that list - I just started watching Last Christmas, and it is just what I needed: a fun, uplifting seasonal romcom. Re-reading this list reminds me of how great these films and shows were!

OK, that's it for me until after Christmas. I still have a few more decorations to put up, cooking to do (just a little this year), and a few more gifts to wrap. I'm trying to pace myself!

How are you doing this holiday season?

Do you have any tips or favorite holiday movies and TV shows?

Please share in the comments.

Enjoy the holiday season, in whatever way you can!

Virginia Vacation Vlog: Fabulous Fall Foliage!

I haven't posted on the blog in a while because we were on vacation last week (and I've been catching up this week - I still have 200 more unread e-mails to go!). We drove down to Virginia with our camper and spent a very relaxing week at two wonderful state parks, surrounded by stunning natural beauty!

I often mention here on the blog how healthy it is to spend time outdoors, and scientific research bears that out. In my book, I included a chapter, The Restorative Power of Nature, that details the scientific evidence that time spent in nature has measurable positive effects on both mental and physical health. That chapter also includes tips on how to bring nature's benefits into your own life, no matter how restricted you are; studies show that even looking at pictures of nature provide benefits. You can read an earlier version of that chapter/article here on the blog. 

So, with that in mind, I am sharing with you a Vacation Vlog I put together, with loads of videos and photos from our camping trip last week. My recommendation is to watch it on a larger screen, like a tablet or laptop, expand the view to Full Screen, and turn up the volume so you can hear the sounds of nature, too. That way, you, too, can benefit from the wonderful natural beauty we were immersed in last week, including brilliantly colorful fall foliage, peaceful lakes reflecting those vibrant colors, and even some wildlife. 

You can watch the video on YouTube or here below:

 

You will see that I was mildly active on this trip, taking short, easy hikes and kayaking with my husband. It is much easier for me to do those things when we're on vacation because there is no stress, no responsibilities, and no obligations! We typically do one mildly active thing after breakfast (if I am up to it), and the rest of the day is very restful and quiet. It is also only possible for me to do these things because I have treated Orthostatic Intolerance (OI), which is a huge contributor to the exertion intolerance of ME/CFS and long-COVID. I also mention in the video that I use a heart rate monitor to stay within my limits.

I hope you enjoyed that mini vacation!

How do YOU enjoy nature within your limitations?

Let me know in the comments below.

You can also connect with me on Facebook and Twitter/X.

Peace and Tranquility in Nature

In my book, I included a chapter, The Restorative Power of Nature, that details the scientific evidence that time spent in nature has measurable positive effects on both mental and physical health. That chapter also includes tips on how to bring nature's benefits into your own life, no matter how restricted you are; studies show that even looking at pictures of nature provide benefits. You can read an earlier version of that chapter/article here on the blog. With that in mind, I wanted to share some photos and video of some of my own recent time spent outdoors, which provided a much-needed respite in the midst of a busy month.

First, in spite of weeks of rain, we managed to get out for a couple of nights camping. It was a tight squeeze, with everything else we've had going on, but those two days of complete relaxation outdoors were worth the rush to get there. We took our pop-up camper to a beautiful state park in Maryland, less than an hour from our home. With views from our campsite of the Elk River and expansive views of the Chesapeake Bay near the historic lighthouse, we soaked in all the sights and sounds of nature. Here, I put together a video of photos from our short trip. View on YouTube or below:

Expand the view to full-screen, and you can also enjoy the peace and tranquility of nature!

Just a few days after that camping trip, we met our sons (and one girlfriend) at a rented lake house for the weekend. Unfortunately, the weather did not cooperate, and a tropical storm sat over the area for much of the weekend (and the following week!), but Friday evening was beautiful. My husband and I got the kayaks out on the lake, and we all enjoyed a stunning sunset over the water. In spite of the rain, the rest of the weekend was super-relaxing, and we loved having that time together as a family. A few photos:

I find being near the water especially peaceful and restorative.

Have you been able to spend any time outdoors lately?

Or even just looking at nature through your windows?

Let me know in the comments below.

You can also connect with me on Facebook and Twitter.