sigh....I saw this list of recent CFS studies this morning on a list I subscribe to and just had to share it with you - it's such an obvious example of all that's wrong with how the CDC approaches CFS.
These two items were listed:
2. RES: Detection of an infectious retrovirus, XMRV, in blood cells of
patients with chronic fatigue syndrome
3. RES: Personality Features and Personality Disorders in Chronic Fatigue
Syndrome: A Population-Based Study - CDC/Emory study
The first one (#2) is from the Whittemore-Peterson Institute, an addendum to their orginal Science article on XMRV in CFS, detailing exactly what kinds of tests they used to detect XMRV so that other organizations can replicate their results - very useful, real science.
The second item (#3) is the CDC's most recent study on CFS. It's just so absurd and un-helpful, it speaks for itself, don't you think?
Which research would you rather hear about, how to detect a newly discovered retrovirus in your blood or what personality features are commonly found in people with CFS?
FYI, these are both from a list I subscribe to through Co-Cure.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Ugh. Typical, unfortunately. How annoying.
ReplyDeleteThanks for sharing this information. I suddenly feel as if we have jumped back 20 years (based on the second study). So sad, and useless.
ReplyDeleteAs my mom would say, "What a crock of bull!"
ReplyDeletetypical, but not surprising ... :(
ReplyDeleteI second Renee's comment.
ReplyDeleteWell, I think it's clear that they still think it's psychosomatic, and they're looking for "proof" of that.
ReplyDeleteThe CDC Hustle ;)
ReplyDeletehttp://www.youtube.com/watch?v=_XjyQbK5ttk
So sad. Still approaching it on some level as a mental disorder rather than a physical. What a waste of time and research dollars.
ReplyDelete