Announcement from Solve ME/CFS Initiative:
On March 25, the Solve ME/CFS Initiative will host a briefing on the
Institute of Medicine report in Washington, D.C. The briefing, which
will include media, congressional leaders and executive branch
decision-makers, is intended to further the IOM report momentum and turn
the report into action, particularly by urging additional federal
research funding.
The briefing will feature three speakers:
- Dr. Ellen Wright Clayton, Chair of the IOM Committee on the Diagnostic
Criteria for Myalgic Encephalomyelitis/Chronic Fatigue Dysautonomia:
Postural Orthostatic Tachycardia Syndrome (POTS)
- Morgan Fairchild, Actress, Activist and Patient
- Carol Head, Solve ME/CFS Initiative President/CEO
You can watch the briefing live by registering at this link - you must register ahead of time to get the link to the live webcast. I just signed up - it only took a minute.
I was surprised to see that Morgan Fairchild is an ME/CFS patient - I had no idea!
Here's my summary of the IOM report and announcement from last month.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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