Anyway, this post is long overdue. At the end of May, the CFIDS Association of America officially launched its new website, Research 1st. It's intended to provide a one-stop shop for everything related to ME/CFS research - the latest news, summaries of important studies, media coverage, and useful links. The CAA asked me to be one of their initial reviewers of the new site, but with my 2-month long bout of bronchitis and our vacation, I never got to it until this week (bad blogger).
So, I have finally taken a look at the new site, and I am very impressed. There is a wealth of information there, and it is well-organized. It has become very difficult to keep track of all that is going on with ME/CFS research (in some ways, that's a good thing!) with all the controversies, increased media coverage, and so many different potential areas of study in this complex illness. The new Research 1st site is a great place to go to get the latest information, to read more about specific areas of research, and to find out what's new in the field, all delivered in a very factual, unbiased way.
Here are some of the features that I found most informative:
- A comprehensive list of studies currently recruiting ME/CFS patients (note that some of the current studies are even being conducted by e-mail and phone, making it possible for anyone to participate);
- A link to Dr. Daniel Peterson's new ME/CFS research foundation and its first two studies;
- A summary of all of the major XMRV studies to date;
- A very comprehensive summary of completed ME/CFS research studies (if you are feeling like nothing is happening in ME/CFS research, just read through some of these summaries!);
- The Research 1st Blog, a great way to stay up-to-date on the latest ME/CFS news.