Sunday, October 10, 2021

Weekly Inspiration: A Day in My Life


I finally finished editing and uploaded my own Day in the Life with Chronic Illness video, showing you a glimpse into my life with ME/CFS, Lyme disease, and OI (POTS and NMH).

As I mentioned in a recent Weekly Inspiration post, I enjoy watching chronic illness "slice of life" videos on YouTube. These are the videos that provide a glimpse into someone else's life with chronic illness. Some are Day in the Life videos, capturing a single day, and others, like the Chronically Jenni Weekly Vlogs I highlighted in that earlier post, cover more time.

What I find interesting and inspirational about these kinds of videos is their honesty and authenticity. As opposed to what you normally find online and on social media, these chronic illness videos almost always show the unvarnished truth, in this case about what life with chronic illness is like: the good, the bad, and the ugly. I find it comforting to see someone else do something small, like meet a friend for lunch or go to a store, and then have to lie on the couch afterward--I feel bad for them, but it means I'm not alone! There's comfort in community, in knowing that others face similar challenges as you do ... and are managing their own version of life and happiness.

So, for all of these reasons, I recorded my own Day in the Life with Chronic Illness video. You can watch it on YouTube at the link (and be sure to "Like" and leave a comment, if you want), and check out the Notes below the video on YouTube. And I will also embed the video here:


As I explain in the introduction to this video, I recorded it on a day when my husband was out of town (a rarity these days!) but otherwise, it was a pretty typical day for me. I wasn't crashed, and I was able to manage small bits of activity, with periods of rest in between. I tried to include everything in my daily routine, to give you a glimpse into my life with ME/CFS, Lyme, and OI (POTS and NMH) and the many kinds of self-care that help me. Since I enjoy the honesty and authenticity of others' videos, I tried to give you the same thing here ( I even started recording when I first woke up!).

Finally, as I mention in the video and in the notes below it, I am only able to manage the level of activity and functioning shown in the video because of the treatments I have found over the past 19 years that have helped both me and my son to feel better, tolerate more exertion, normalize our immune systems, prevent and lessen crashes (flare-ups), and overall improve our quality of life. For more information on Effective Treatments for ME/CFS (most of which are readily available worldwide and inexpensive), click on that link to the page here on my blog and/or check out the Notes below the video on YouTube.

 

And I would love to hear about YOUR life! What is similar or different than mine? What things help you to manage life with chronic illness?

Tell me about your own daily life in the comments below.


Tuesday, October 05, 2021

TV Tuesday: Big Sky

I love fall! Besides the perfect, cooler weather after summer's high heat and humidity and the beautiful colors of fall, lots of our favorite TV shows are back with new seasons! One of the shows we have most looked forward to, Big Sky, has just returned with its 2nd season. This mystery/thriller just gets more and more twisty, with surprises in every episode! To avoid any spoilers, I will just focus on the beginning of season 1 in my description.

As the title suggests, Big Sky is set against the gorgeous natural backdrop of Montana's mountains, forests, and rivers, but what's happening here is neither pretty nor natural. Two women and best friends, Cassie (played by Kylie Bunbury) and Jenny (played by Katheryn Winnick), run their own private investigator business in Helena, MT. Jenny is married to Cody, played by Ryan Phillipe (a local Delaware native!), and they have a teen son named Justin, played by Gage Marsh. In the first episode, Justin is waiting for his girlfriend and her sister to drive in from out of town for a visit. The two sisters, Danielle (played by Natalie Alyn Lind) and Grace (played by Jade Pettyjohn) are shown in their car, singing along to music and enjoying their road trip. Then disaster strikes as the two young girls are abducted on a deserted highway. Justin alerts his parents that they never showed up and aren't answering their phones, and soon both the police and Jenny, Cody, and Cassie are searching for the girls and investigating. Montana State Trooper Rick Legarski, played by John Carroll Lynch, is brought in to help with the search, but he doesn't seem worried and explains that lots of young women go missing from this area all the time. Soon, another young woman, Jerrie (played by Jesse James Keitel), is kidnapped from a truck stop by a creepy guy named Ronald, played by Brian Geraghty. And the twisty tale is off!

This is a tense and suspenseful story, with plenty of surprises you will never see coming. The acting is all top-notch from this ensemble cast, and the writing is excellent. The plot is classic thriller, with plenty of action and suspense in every episode. We have just started the newly begun second season, and I couldn't tell you anything about it without giving away all kinds of spoilers from season 1--a lot happens in every single episode, to keep you guessing (and watching). Oh, and it's got a great soundtrack behind the action, too! We've been waiting for this new season to come back, and this compelling, gripping show has already shocked us and taken us by surprise, in the first episode of season two. This is one of our favorites these days, in part because it doesn't fit the typical mold. Highly recommended for mystery/action/thriller fans.

Big Sky is currently airing on ABC on Thursday nights or you can catch it On Demand or streaming on Hulu.