Thursday, August 11, 2022

Interview on ME/CFS, OI, and long-COVID on Podcast


A couple of weeks ago, I had the great pleasure of being interviewed by Dr. Tony of the Crooked Spine podcast. He was fascinated by my family's story and asked me all about ME/CFS (myalgic encephalomyelitis, chronic fatigue syndrome), orthostatic intolerance (including POTS), and Lyme disease and other tick infections. We also talked about the challenges of living with any kind of chronic illness and ways to cope.

The video is now available on YouTube. You can watch it here on my channel at the link. And I will also imbed the video below so you can watch it right here, if you prefer:

This was a great opportunity to help get the word out about ME/CFS and long-COVID, as well as the OI that accompanies it and the additional challenge of tick infections.

I hope you enjoy it. You can leave comments on YouTube below the video or here on the blog. 

Let me know what you think and if you have any questions.

Tuesday, August 09, 2022

TV Tuesday: The Bear

One of our favorite TV shows this summer has been The Bear, a unique, engrossing show about a professional chef trying to save his family's dive restaurant.

Carmen Berzatto (Carmy or Bear to his friends and family) is played by Jeremy Allen White, a wonderful actor best known for his long-running role as Lip on Shameless. Carmy has come home to Chicago after his brother Michael's death by suicide. Michael left the family's grimy beef sandwich restaurant to Carmy, who trained as a professional chef at the Culinary Institute of America and has worked in what's considered the best restaurant in the nation. Carmy was even recognized as one of the top young chefs in the country. His family's run-down sandwich shop is a big step down for him and is failing financially. Filled with grief, Carmy is determined to turn things around and make it a success. Most of the employees have worked for Michael for years and are devoted to the restaurant but have no professional training. Tina, played by Liza Colon-Zayas, is a smart-alecky woman who doesn't like being told what to do by this new guy intent on changing things. In contrast, Marcus, played by Lionel Boyce, who normally just bakes the rolls for the sandwich shop, is excited to have his role expanded and has dreams of baking some of the magnificent desserts he's seen in books and magazines. Richie, played by Ebon Moss-Bachrach, is an obnoxious, loudmouth who is always yelling, but he grew up with Michael and Carmy and is a part of the business. Carmy brings in one new person, Sydney, played by Ayo Edebiri, an ambitious young sous chef who has big ideas and is willing to work in this dive restaurant just for the honor of working under the great Carmine Berzatto. In just eight episodes, this ragtag crew argues and fights to try to keep the restaurant afloat, with plenty of conflict between Carmy's professional chef methods and the way things have always been done. Carmy almost destroys himself with his long hours, grief, and the stress of trying to save the restaurant. Somehow, things begin to come together and improve, but this determined group encounters one challenge after another, from overflowing toilets to kitchen fires to a rowdy bachelor party.

I've been trying to figure out what makes this show so special and engaging. Certainly, part of the equation is Jeremy Allen White, but the other cast members are just as important (and talented). It's an ensemble show with a lot of emotional depth about trying to achieve what seems an insurmountable goal against horrible odds. We were rooting for these flawed people every step of the way (even Richie once we better understood him). There is suspense in whether or not they can keep the restaurant going and whether they can improve it without going bankrupt, and there are plenty of surprises and secrets left behind by Michael (mostly bad ones). It's an underdog story with a lot of heart, and we loved every moment of it. We hope there will be a second season!

The Bear, an eight episode season, aired on FX and is also available on Hulu. Just watching the trailer gives me chills and makes me want to watch the show all over again!


Monday, August 08, 2022

Chronic Illness Vlog - July


Hi, all! Life has been hectic recently, but I wanted to let you know that I tried something new for my YouTube channel. I was inspired by Pippa Stacey of the Life of Pippa channel, who always makes wonderful live vlog videos. She has chronic illnesses and creates these fun, honest vlogs, with video clips from her real life. I always enjoy her videos, so I decided to try it myself!

My first attempt is my Chronic Illness Vlog - July. It was meant to cover one week, like most of Pippa's do, but, well ... life got complicated, as you will see! This vlog includes short video clips of my real life, including good days, bad days, and everything in between. You can watch it here or click the link to watch on YouTube:


I would love to hear what you think of this kind of vlog format. Most of my other chronic illness videos have been more informative types, focused on aspects of chronic illness or coping tips.

So, check it out and let me know your thoughts! Would you like to see more vlogs? Are there other informative topics you'd like for me to cover on video? 

Leave a comment here or below the video on YouTube. You can also connect with me on Twitter or on this blog's Facebook page.


Monday, August 01, 2022

Movie Monday: The Power of the Dog

A couple of weeks ago, my husband and I decided to watch a movie on Saturday night. We've gotten so caught up in following all the great TV shows available on cable and streaming now that we rarely watch movies anymore. That means we are way behind on watching all the award nominees. We chose The Power of the Dog which had been nominated for a Best Picture Oscar in 2022, as well as eleven other Academy Awards! This gorgeous Western was not exactly what we expected, but it was an excellent movie.

Benedict Cumberbatch plays Phil Burbank (and was nominated for a lead actor Oscar for his role), a hard but charismatic rancher in 1925 Montana. He and his brother own the ranch left to them by their father, but it's clear that George, played by Jesse Plemons, is more the businessman, and Phil is the hardcore rancher. He inspires awe and fear in those around him. While on a cattle drive, Phil and George and their men stay at a boarding house/restaurant run by the widowed Rose Gordon (played by Kirsten Dunst, also nominated), who lives there with her teen son, Peter (played by Kodi Smit-McPhee). George falls for Rose, and they are soon married. Rose drops Peter off at school, where he will study to become a surgeon, and then heads off with George on a multi-day trek across a bare but beautiful landscape to the isolated ranch. There, George and Rose are happy at first, but Phil seems determined to torture Rose. George is often away on business for a week or two at a time, and during those times especially, Phil is relentless in making Rose feel like an unwelcome intruder, driving her to turn to alcohol. When Peter visits during his summer break, he can immediately see the frail emotional state his mother is in and that she's been drinking. In an unexpected move, though, Phil stops mocking the boy for being effeminate and instead takes him under his wing, teaching him to ride and rope. With all the different tensions just below the surface, it's unclear what will happen next.

There are plenty of secrets lurking behind the characters here, and some plot twists that took us by surprise. The growing tension on the ranch creates plenty of suspense. It just feels like something will eventually have to give in this unequal battle of wills. The stunning landscape and gorgeous cinematography add a lot to this film (it was also Oscar-nominated for Best Cinematography, and it's clear why). It's easy to get lulled by the atmosphere and harsh beauty of the ranch so that you don't see the surprises coming. This is a dark movie with a lot of emotional complexity. It was different than what either of us expected, but it was very good, and it's obvious why it got so many award nominations.

Have you seen any of this year's Best Picture nominees yet? This was only our second!

The Power of the Dog is currently available on Netflix.