What follows is excerpted from my upcoming book, Effective Treatments for ME/CFS: Our Experiences (© 2018 Suzan L. Jackson). Please don't reprint it without permission, though feel free to share this post with those looking for a doctor. And let me know in the comments if you know of other doctors with expertise in treating ME/CFS that I have not included here.
Theresa Dowel, NP (Nurse Practitioner) – Four Peaks Clinic – Flagstaff, AZ (she studied under Drs. Montoya and Chia)
Dr. Nathan Holladay - Salt Lake City, Utah - trained at the Bateman Horne Center
Dr. Kaufman and Dr. Chheda – Center for Complex Diseases – Mountain View, CA
- Dr. Dale Guyer – The Guyer Institute – Indianapolis, IN (I’ve heard of him from other patients but don’t know anyone personally who has seen him for ME/CFS)
The Holtorf Clinic - multiple locations, including Southern
CA, Atlanta, UT, and Philadelphia. Also treats other related conditions, including Lyme and other tick infections, thyroid and other hormone dysfunction, and fibromylagia. Have heard good experiences from patients.
- Dr. William Spurlock - Dallas, TX (note: you may see that Dr. Spurlock has been disciplined by the Texas Medical Board for ordering “medically unnecessary tests” and using “medically unproven” treatments for ME/CFS – ALL ME/CFS doctors could be said to do this, since there are no FDA-approved treatments for ME/CFS currently and treating it effectively requires ordering tests and using treatments that are officially unproven for the condition. I know that he uses many of the same treatments as the top experts listed above, and I personally know of patients who’ve improved with treatment from him – even one young woman who fully recovered.)
- Dr. David Systrom - Brigham and Young Hospital - Massachusetts - focuses mainly on treating OI and exercise intolerance - very knowledgeable in those areas
- Dr. Amy Yasko – Maine (her expertise is broader than ME/CFS but the treatments she focuses on are applicable to ME/CFS)