Wednesday, February 26, 2025

Battling a Virus & Sinus Infection on Top of ME/CFS


It's been a rough few weeks for me! In spite of rarely going out and wearing a mask when I do, I caught some sort of respiratory virus in early February (probably from my rare dinner out in a restaurant!). It didn't feel like the flu or COVID, as the symptoms developed gradually (those two both tend to hit hard all at once). Just to be sure, I tested for COVID four times (in the past, I haven't tested positive until day 4 of symptoms)--all negative.

I mostly just had sinus congestion and was exhausted, so I treated the symptoms and added in extra herbal antivirals, plus some extra vitamin C, vitamin D3, and zinc, to support my immune system. After about 10 days, I started to feel better, which was pretty surprising. It seemed I'd had a normal cold, lasting about the normal time--crazy! I haven't had a plain old cold in about 20 years; I don't normally catch viruses (other than COVID, since I don't make the antibodies against it). I had two days of feeling really good, almost back to "my normal" baseline. Then, the sinus congestion worsened again, and I felt like I'd been knocked down, totally wiped out again.

That pattern--mostly recover from a virus and feel good, only to suddenly worsen again--usually means a secondary bacterial infection (which is also pretty normal!). For decades, I got bacterial bronchitis 5-6 times a year, but this was not in my chest but definitely in my sinuses. I sent a note to the Nurse Practitioner now caring for me, since my doctor retired in January. But it was a Saturday night, so I also started taking antibiotics I had here (a recent prescription I hadn't used). I knew it was the right one because I have so many allergies and intolerances that there are only two types I can usually tolerate, and I knew which one was used for bronchitis and which one was preferred for sinus infections.

The congestion began to improve again in a couple of days, though I am still pretty wiped out. I avoid antibiotics if at all possible, since they make my chronic yeast overgrowth much worse (that's why I had some I hadn't taken last year). There are always complications with this crazy disease--nothing is ever simple! At this point, I'm not sure if I'm still worn out from the infection or if it's now due to yeast overgrowth, but I am a little better than I was yesterday. I know I need to stay on the antibiotics for another day or two, to make sure the sinus infection is completely cleared up--I wouldn't want to have to take another round of them!

I made a chronic illness vlog during the worst of the virus. It provides a peek into my daily life when I'm badly crashed, as well as the treatments I use to ease viral symptoms and help me get over a virus faster, plus some insight into my usual ME/CFS treatments as well. You can watch the vlog on YouTube or I'll include it below:


I finished recording that vlog last Wednesday, and Thursday and Friday were my good days! 

I'm getting pretty nervous because we're supposed to be leaving on a long road trip to Texas with our camper in less than two weeks (our son will be here to watch the house). We have plans to visit lots of friends and family and have made campground reservations and other plans, so I really hope we don't have to cancel. Hopefully, I will be feeling better well before then so we can get ready. I will post some videos to my YouTube channel from the road but may not be able to post anything here on the blog.

How do extra infections on top of your chronic illness affect you?
 
What helps you?
 
Share your experiences (or any questions) in the comments below.
 
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Friday, February 14, 2025

Life with Chronic Illness: Finally Setting Goals for 2025!


Life with ME/CFS is always unpredictable! My last post here was 2024 Year in Review: Still Riding the Chronic Illness Rollercoaster! That was not only a summary of how I felt last year and what caused challenges for me but also a long list of treatments (old and new) that I tried or changed last year, what worked and what didn't. Since then, I recorded a video version of that post, so if it was too much for you to read--or you just have an easier time with video--you can watch my 2024 Year in Review (including the treatments I tried) on YouTube or below:


Once I had finished summing up last year, I was finally ready to start planning and setting goals for 2025 ... in February! 

I've written and talked extensively about Setting Goals When Chronically Ill: Improving Your Life in Tiny Steps. You can read the full chapter excerpted from my book here on the blog or watch the video version of it.

But this year, I was feeling overwhelmed by it all, especially since I didn't even start thinking about the new year until we were a month into it! I expressed these frustrations in a video, How Do You Juggle It All? Without Feeling Overwhelmed. Based on the comments, I think a lot of people--both healthy and sick--could relate to my feelings. Watch it on YouTube or below:


My own goals process had become more and more complex over the years, so this year I decided to take my own advice! I focused on only a few objectives for each of my Lifetime Goals and really tried to narrow my attention to tackle that feeling of always being overwhelmed. And to keep my limitations in mind.

Given the ups and downs in my health last year, health remains a big focus for me (of course). I also got rid of perennial goals that have become a part of my normal routine, like diet, walking (when I am up to it), daily yoga stretches, and resting when I crash. What I was left with, under my goal of optimizing my health (given my illness) was:

  • Set up mold inspection & follow-up on results
  • Continue to avoid infection risks
  • Find new primary care doctor (mine of 23 years just retired!)
  • Talk to my ME/CFS specialist about my changing immune dysfunction
  • Try therapy for dysfunctional family relationships

I have similarly streamlined goals for the other areas of my life, with a big focus on traveling more this year with my husband and our camper.

Things were going quite well with my new approach, and I was feeling less overwhelmed and stressed. Then, a few days ago, some viral symptoms started. I haven't had a cold or other everyday virus in 20 years due to my immune system over-reacting to most viruses. I immediately thought it must be COVID (which is in a class of its own, plus I don't make many antibodies against it). Three days in, I still feel like I have a cold. It's not nearly as severe as my bout of COVID last summer (and I've had two negative tests so far). I am completely mystified because this just doesn't happen to me, but I am hopeful I will recover in a short-ish time. 

Meanwhile, I am resting a lot, ditching all those carefully thought-out plans for the moment, and being very, very cautious. I'm following my own advice and upping the doses of all my herbal anti-virals. I have no idea what's going on with me, but I'm hoping for the best. The first of our month-long road trips is supposed to begin in less than a month, so fingers crossed!


How have you been?
 
Do you struggle with feeling overwhelmed?
 
Share your experiences (or any questions) in the comments below.
 
You can also connect with me on Facebook and Twitter and Instagram.