Saturday, May 14, 2011

More CFSAC Testimony From Another Teen

A 15-year old teen girl, a good friend of ours from our local group, reads a poem she wrote about living with ME/CFS:


  1. How sad to be so young and faced with this terrible disease.

  2. It's funny, I watched this video and the first thing I thought was, "She doesn't look sick!" The same thing I'm afraid everyone is always thinking about me.

    I know I can seem as bubbly and healthy as her myself for a short time, even though I feel hollow and feeble inside, and then I go home and go back to resting for days at a time.

  3. ha ha Alison - I sometimes find myself thinking the same thing when I meet someone with ME/CFS!

    Actually, Christina is a good friend of ours. Before she started treatment for OI, she would sometimes faint 6 or 8 times a day! Her POTS is very severe. She had a very bad winter but is actually feeling pretty good right now, thank goodness.

    That is one of the worst paradoxes of this illness, isn't it?