I wasn't sure if the camping weekend would be too much for him, but I really wanted to get him out of the house so he could enjoy this gorgeous weather. We went to Elk Neck State Park in Maryland, a beautiful park just 45 minutes from our home. Within an hour of setting up, Jamie smiled at me and said, "Mom, this is really lifting my spirits." That made all the work and all the worries worthwhile!
Jamie mostly took it easy and spent a lot of time reading - in the camper and in a lounge chair outside. I worried about him walking back and forth to the restroom (I know it's not much, but he hadn't even been out of the house in weeks) and I told him he could drive, but he managed OK.
On Sunday, we even took a little walk down to the beach along the Elk River. Craig and his friend had been building a raft all weekend, so we went to see it. Ken and I drove Jamie to the closest spot we could find to the trail, and he managed the short walk.
Jamie was worn out later on Sunday and Monday (but no school on Monday anyway), but he actually made it into school for 2 classes today - that is a huge accomplishment after weeks on the couch.
I am hoping we have found the right balance to allow him to function. I have been frantically poring over his records, trying to figure our what helps and what hurts, and trying all sorts of new things. I backed down on his dose of Immunovir - I saw he did better at the start when he was only taking 2 pills a day, so we went back to that dose. And he started B6 and Spirulina, two supplements that are supposed to help with the horrible herx reaction he's been suffering from due to his Lyme, bartonella, and babesia treatment. We will see what tomorrow brings.
Meanwhile, we all enjoyed our little getaway (don't worry - we used lots of bug spray while in the woods!!). It was a nice reminder of one our favorite family activities, and we are all looking forward to spring break now.