Dr. Peter Rowe of Johns Hopkins, renowned pediatric ME/CFS and OI specialist, recently gave a webinar: A Clinical Approach to ME/CFS in Adolescents and Young Adults: A Practical Primer. This was part of the Solve ME/CFS Initiative's wonderful webinar series. You can watch his full webinar at the link above, on the Solve ME/CFS website, watch it on YouTube, or watch it right here:
Although the talk is aimed at doctors like pediatricians and family doctors (and is much-needed for that audience!), it is also very interesting and informative for patients and parents, even someone like me who spends a lot of time reading and researching our illness. His talk is aimed at treating children and teens, but everything he says is also applicable to adult ME/CFS patients. He covers:
- Diagnosis of ME/CFS and how to exclude other conditions
- The critical role of Orthostatic Intolerance (OI) in ME/CFS
- Ehlers-Danlos Syndrome and Joint Hypermobility and the significant overlap with ME/CFS
- Step-by-step approaches for doctors to investigate their patient's condition and try treatments
- Patient case studies - both successes and tougher cases
If you want even more from Dr. Rowe, here is an earlier webinar he did for Solve ME/CFS, focused on Post-Exertional Malaise (which is also closely related to Orthostatic Intolerance).
I highly recommend you watch this 1-hour presentation - it's chock-full of useful information.
Even better: Send the link to your doctor or your child's doctor and ask him or her to watch it!