Wednesday, March 22, 2017

Webinar by Dr. Rowe: ME/CFS in Adolescents & Young Adults

Dr. Peter Rowe of Johns Hopkins, renowned pediatric ME/CFS and OI specialist, recently gave a webinar: A Clinical Approach to ME/CFS in Adolescents and Young Adults: A Practical Primer. This was part of the Solve ME/CFS Initiative's wonderful webinar series. You can watch his full webinar at the link above, on the Solve ME/CFS website, watch it on YouTube, or watch it right here:

Although the talk is aimed at doctors like pediatricians and family doctors (and is much-needed for that audience!), it is also very interesting and informative for patients and parents, even someone like me who spends a lot of time reading and researching our illness. His talk is aimed at treating children and teens, but everything he says is also applicable to adult ME/CFS patients. He covers:
  • Diagnosis of ME/CFS and how to exclude other conditions
  • The critical role of Orthostatic Intolerance (OI) in ME/CFS
  • Ehlers-Danlos Syndrome and Joint Hypermobility and the significant overlap with ME/CFS
  • Step-by-step approaches for doctors to investigate their patient's condition and try treatments
  • Patient case studies - both successes and  tougher cases
He briefly touches in the role of infections, immune dysfunction, and mitochondrial dysfunction (in the Q&A at the end), though those topics are not covered in great detail.

If you want even more from Dr. Rowe, here is an earlier webinar he did for Solve ME/CFS, focused on Post-Exertional Malaise (which is also closely related to Orthostatic Intolerance).

I highly recommend you watch this 1-hour presentation - it's chock-full of useful information.

Even better: Send the link to your doctor or your child's doctor and ask him or her to watch it!

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