I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Wednesday, December 07, 2011
Summary of IACFS Meeting
The International Association for CFS/ME (IACFS) held its biennial meeting in Ottawa this fall. Dozens of top CFS researchers reported on their scientific findings. I wish I could attend something like this, but even the 4-hour NJ CFS Conference wiped me out last year. So, I was thrilled to find this excellent summary of the IACFS Conference, written by the renowned Dr. Lapp. He summarizes all of the key research studies in easy-to-understand language. I highly recommend you take 10 minutes to read this - there is just so much good information here. And it is all very encouraging - so much excellent scientific research going on in so many critical areas!
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Thanks for posting this Sue. x
Sue,
I'm new to your blog. My wife and I live in San Diego. I'm 62 y.o. and I've been dealing with CFS for 10 years. I find all my symptons in what others say on your blog. Some of them describe 'our' problems very eloquently. Thanks to you all. I enjoyed the writing you guided us to, 'IACFS'. This is the very first-drum roll-site I've ever reached out to. I'm sure I'll be back often. I have the time if little energy!
Thanks
Bob Deering
Sue, I'm so glad you posted this. The reference to a 10 minute read finally got me to look at it. I linked to it on my Family FaceBook page. There are about 25 people in my generation of my Dad's family. 5 of us have dealt with CFS and/or fibro.
Thanks Sue, I had read most or all of this before on one of the association sites but picked up some new things. Firstly, a primer - yay. Let's hope a) it's internationally distributed and b) includes a specific section for adolescents. Secondly, 'the balloon like leggings' described as used with heart patients (EECP I think it was ) may fit with the whole leg massage therapy we've discussed... Interesting.
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