Better late than never....crazy week here.
Yesterday and today is the Spring 2013 meeting of the CFS Advisory Committee to the Department of Health and Human Services in the U.S. You can watch the meeting live here. And here is the meeting agenda so you can decide which parts you'd like to see. There is a public comment period scheduled for 11:15 am EST today and a public Q&A period (new feature!) at 2:45 pm. The main talks today are on Health Insurance at 10:15 am and (my personal favorite) How To Get More Clinicians Involved in ME/CFS? by Dr. Susan Levine at 1:30 pm.
So, tune in at least for a part of the meeting, if you can. The public comment and Q&A periods yesterday were very interesting.
We're on the road today, going to see my son's Lyme doctor in NJ, so I'll miss most of today's webcast, but CFSAC will post videos of each portion of the meeting afterward.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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