Finally! Someone is undertaking a case study/survey to document how low-dose naltrexone (LDN) can be helpful for those with ME/CFS...but she needs our help!
Monica Bolton, an ex-doctor and ME/CFS patient who responded well to LDN, is gathering examples and case studies of ME/CFS patients who've had success with LDN. As she explains on her website, we can't even hope for a scientific study to prove the efficacy of LDN in ME/CFS until we bring it to the attention of the medical community. Currently, there is not one single example in the medical literature of using LDN for ME/CFS, so mainstream doctors are understandably reluctant to prescribe it.
My son and I have benefitted greatly from LDN. I've taken it for about 7 years now, and with some recent changes to my dosing, it is still helping me - with increased energy, reduced fatigue, and overall improvement in symptoms.
So, if like me, you've taken LDN for ME/CFS and have had some improvement with it, please help Monica help us by taking a few minutes to complete her survey - I'm doing it!
You can visit her website for more information or e-mail Monica to get a copy of the survey.
This is a great chance to participate from your beds and couches and help move ME/CFS research forward!
P.S. If you haven't tried LDN yet and want to know more, my blog post contains lots of links for more info, and Monica's site at the link above also contains some great information.
And if you have fibromyalgia, there HAS been a scientific study on use of LDN for fibro - conducted by Stanford.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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