Thanks for your patience during my hiatus in February while I worked on my ME/CFS Treatment book - I finally made some good progress on it and made good use of the time not spent blogging. I am back now and noticed this week a flurry of exciting events coming up that will give ME/CFS patients (and others) a chance to learn about the latest, ground-breaking new research all across the many aspects of our illness. Check out these upcoming events that you can listen in on or watch, either live or after the fact:
Emerge Australia's International Research Symposium on ME/CFS
This year, Emerge Australia is the host of this exciting annual research symposium that brings together ME/CFS researchers from a range of specialties and countries around the world. The event will be held on March 13-15, with two days of scientific/research programs and a third day focused on clinical topics. You can view the full agenda here (though I don't know how the dates/times translate to American or European time zones!). You can watch the symposium live either through Go Live Australia or Facebook Live at their page. Currently, the Go Live Australia link they provided isn't working, so it's best to get updates and new links through the Facebook link or at their website (link there isn't working either, but I'm sure they'll fix it before the conference).
NIH ME/CFS Conference
Spring must be conference season! On the other side of the world, the U.S.'s National Institutes of Health (NIH) will be hosting an ME/CFS Conference on April 4-5. This conference is exciting both for its speakers and presentations, as well as for the mere fact that NIH is hosting it. The speakers include a roster of the expert names we have all come to know (and love) like Rowe, Montoya, and Klimas, as well as a list of researchers who are new to ME/CFS and presenting their work and results to an ME/CFS audience for the first time - this is a much-needed and exciting development. You can check out the conference agenda here, and register for the livestream here. Health Rising's Cort Johnson has an excellent overview of what to expect at the conference.
LDN Radio Show - March & April Programs
This one isn't a conference but an on-going radio show run by the UK's LDN Research Trust. LDN is low-dose naltrexone, a medication used in tiny doses that many of us with ME/CFS, fibro, or tick infections use to help normalize the immune system, with side effects of reducing pain, improving sleep, improving energy, and more. You can read more about our own experiences with LDN, plus resources for more information in this blog post (it is one of a bunch of treatments that have helped my son and I). The radio show airs at 9 pm London time (4 pm EST), and you can listen live or listen (or watch) past shows. All the information for tuning in, plus the upcoming schedule of guests for March and April, is at their website.
There are lots of exciting developments for ME/CFS patients and lots of great ways to stay informed!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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