No Movie Monday today because we spent the weekend in Connecticut at my mom's house with my sister and her family. Ten of us in one house for 3 days! It was, of course, completely exhausting - constant noise and activity - but it was also very nice to see everyone and spend time with my family. I especially enjoyed playing with my little niece and nephew. We took a walk on the beach (where my 4-year old nephew went absolutely crazy catching tiny crabs with Jamie and Craig), ate one huge meal after another, and played lots of games. It was fun teaching my niece to play jacks and pick-up sticks These are two of Craig's favorites - he's been quite impressed with my jacks skills which are surprisingly intact after a 35-year hiatus! (My mom is pretty amazing at jacks, too!) And Jamie totally whipped me 8 games out of 9 in backgammon. I'm wiped out today, but it was a good weekend.
I received lots of nice gifts for Mother's Day from Ken and the boys (and from my mom!), but the highlight was a gorgeous necklace and earrings from fellow-blogger and CFS-mom Lori's Waterstone Jewelry. Lori is so talented! Her jewelry is beautiful, and I can't wait to wear my new gifts.
On to more serious business...Today is the CFSAC meeting in Washington, DC, with the new committee members. The meeting is being broadcast live today from 8:30 - 4 pm Eastern time. Here's the link to watch (second one down). A local mom with two sons who have severely disabling CFS asked if I wanted to go with her to attend the meeting, but I knew the weekend would do me in. Instead, I submitted written testimony that I hope will be read during the meeting or at least included in the minutes. Here's what I submitted:
"My name is Sue Jackson, and I have had CFS since March 2002. Both of my sons, ages 12 and 15, have it also. I have always wanted to come to a CFSAC meeting, but I need to nap every day, and I know that attending would cause a relapse.