Only Tuesday? Really? Whew, I'm pooped. Ken left at 5 am Monday morning for a week in Texas, so I'm on my own this week...and it's a busy week.
The toughest part is getting both boys to school on time. Ken normally handles the ultra-early high school run, so I'm having to get up at 6:30 am this week. I'm turning the light off at 9:30 each night, but I'm still worn out by the time I get the boys to school! Lots of stuff going on in the evenings this week, too. Although Jamie skipped soccer practice tonight because he's worn out, too.
Ironically, after posting last week about treating sleep dysfunction, Jamie's struggling with his sleep. It's possible that his dose of nortriptyline isn't enough any more (he's grown so much in the past 2 years!), so his doctor conferred with Dr. Rowe at Johns-Hopkins and said he can try trazodone (which works for me), if he needs to. We'll see. First, we're trying taking the nortriptyline earlier in the evening and moving all his Florinef to the morning (according to the doctor, it can be stimulating). I hope he's able to sleep better tonight.
Meanwhile, after the evening rush hour - picking up kids, dinner, dishes, washing out Gatorade bottles, getting lunches ready for tomorrow - I'm feeling a bit of the blues creeping in, which I think is just a sign that I'm worn out. I need to tread carefully! I really hope to make it to my book group meeting tomorrow night, so I plan to take it easy during the day.
Onward...
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
2 comments:
Oo 'eck, hang in there girl. Eat lots of low carb, nourishing food, get lots of daytime rests etc etc.
(I have to take my Cipralex as soon as I get up in the morning or it interferes with sleep).
It's Wednesday now so the end is in sight.
I am so sorry you are needing more rest, etc. but I am often amazed at all you can do. Wow! Hope the rest of the week goes well, you are able to get the rest and sleep you need, and get to your book club too!!!! Hoping the blues stay far away..
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