I feel like Rip Van Winkle waking up from a 4-week nap. It's the end of October? The leaves are already half gone from the trees? When did this happen?
I am definitely feeling much better, for the second day in a row, after a couple of days of feeling sort of so-so (a big step up from blech). After breakfast this morning, my son asked if I felt well enough to walk to the bus stop with him instead of driving, and I was so excited to be able to say, "Yes! Yes, I do feel well enough to walk!" So, we walked up the street in the cool autumn sunshine - the air smelled so good!
I also made a short trip to Trader Joe's this morning to restock since we used all our convenience foods while I was sick. I am filled with joy and such a sense of freedom! To be outdoors, to be able to walk, to go to the store when I need to! Amazing. The bad times with CFS certainly do help us to appreciate the good days. Driving with the sun coming in through the window, I was stunned by the bright paintbox colors of the trees. Beautiful.
I have a very busy week ahead, and I am acutely aware of how fragile my well-being is. We have Craig's last two soccer games, I go to NJ to see the Lyme doc tomorrow, my Mom comes to town on Wednesday for our book group, her husband joins us on Friday for Halloween weekend, and on Sunday, my Mom and I are supposed to go see a show in NYC for the day while Ken and Pop Pop and the boys go to a Jets game. Even more for Jamie, he has his homecoming dance on Saturday night.
A too-full schedule even on a very good week, so wish me luck! I will try hard to pace myself. Thanks again for all of your encouragement and well wishes during my long, severe crash - your words of support really helped me get through the dark days!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
13 comments:
Yay Sue!…"out of the woods" and into the woods to see the leaves ) or what's left of them there, and breathe some fresh fall air!…GREAT to hear that you're feeling better. THIS is your newer NORM!…Keep going. Sounds like I full week (and those terrify me too!) "Pace yourself" as we all say; tougher to do when we're coming out of a crash. So much we want to make up for!…day by day; that's the way!…
Best, Martine
Oh congratulations! You sound so excited and happy - it's great. AND all my best for the upcoming week. That's some kind of list.
Good news Sue! I'm glad you're feeling better! It feels like such a gift to be able to enjoy being outside after being cooped up-I know exactly what you mean. It's the one gift that comes out of that dark place-appreciating the beauty in the world.
I'll send healing thoughts your way as you tackle the busy week coming up.
Terri
Wheee, that's exciting! And yes, pls do pace yourself this coming week. I want to read about more walks and outings!
I am going to keep my fingers crossed for your very busy week, and hope that you'll get to do everything you want. Even if you don't I am SO glad that you are feeling better today!
"Above all, do not lose your desire to walk. Every day I walk myself into a state of well-being and walk away from every illness." - Soren Kierkegaard
Ah, if only it were that easy, to walk away from illness, right? Isn't that one of the craziest things about CFS, that walking can be bad for you?
Such good news, Sue. It sounds like you'll be able to participate in the busy week ahead! Pace and rest. Pace and rest. And...have fun!
Brilliant!
Now I can hope. If Sue can bounce back ... Once again, you are an inspiration. I'm so happy to hear you are doing better!
Yay! It's good to hear that you're feeling better. I hope you are able to enjoy your full week. A show in NYC especially sounds like fun!
Hi,
I love your blog about CFS. I suffer with MCS, and I think it is important that many of us discuss our "invisible disabilities" in public arenas, so that people can learn. Glad to hear that you had a great day! I miss the woods and the fall leaves, as I just moved to Florida, this year.
Have you ever read the book, "Explaining Unexplained Illnesses" by Dr. Martin Pall? It is excellent! Maybe you can present it to Dr. Oz?
Blessings!
Syrena
Hi, Syrena -
I have heard a lot about Dr. Pall's book, though I haven't read it myself.
Thanks for stopping by and taking the time to comment.
Sue
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