Thursday, June 30, 2016

Stanford ME/CFS Study Looking for Female Participants

Here's a great opportunity to participate in an ME/CFS study at a renowned research facility with one of the top ME/CFS experts in the world. This can help to move research and knowledge forward and might also help you to learn more about your own illness (I'm not sure whether they will be sharing individual results with participants or not). Details and contact info below:

"Recently the Stanford Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Initiative began recruiting for the neuroendocrine study.

Dr. Jose G. Montoya, Professor of Medicine at Stanford, is conducting a study investigating the endocrine system in patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and healthy controls.

He is looking for individuals with ME/CFS to participate in the study.
Participants must be female and 18 ‐ 45 years old.

Participation in the study involves an online questionnaire and two study visits at Stanford with blood draws and endocrine testing.

There is no cost to participate in the study.

Participants will be compensated $200 for completion of the study.

If you are interested in participating or have any questions, please contact the study coordinator, Jill Anderson, at (650) 723-9711.

For general information about participant rights, contact 1‐866-680-2906."


Anonymous said...

Hmm wonder why Montoya just want woman in that age group. Since his studying endocrine system and that is the age before menopause I suppose its something about estrogen.

Sue Jackson said...

I figured it had to do with it being a study on the endocrine system, too - anything endocrine-related, they usually stick to one gender since each has different "normal" set of hormonal levels. Will be interesting to see what comes of it.

Corey said...

This month I just put together that I'm having the worst dips in my cfs during menstration. Makes me wonder about relationship between estrogen etc. snd cfs, especially since such a huge percentage of cases are women.

Sue Jackson said...

Oh, yeah - I think that is the same for all of us. ME/CFS definitely gets worse during menstruation. A big part of our illness is endocrine (hormone) dysfunction, so any changes in any hormones will affect us. And experts aren't quite sure why immune disorders tend to affect more women than men, but hormones definitely play a role.

I resolved this issue by going on a 90-day birth control pill. I only go off it 5 days every 12-14 weeks to get a period - so that is a big improvement instead of suffering worsening symptoms one week out of every four! It's been a HUGE help to me - and helps to control my headaches, too. Plus, birth control pills are good for Orthostatic Intolerance!