There are two online surveys for ME/CFS patients currently open for participation - this is a great way for even those who are homebound to help move ME/CFS research forward - even from your bed!
The first is sponsored by the excellent Massachusetts CFIDS/ME and FM Association and is a VERY brief survey on patient experience with commercial medical insurance companies - it is just a few questions (with room for explanation, if you like) and literally took me less than 5 minutes to complete.
The renowned Leonard Jason at DePaul University has already contributed a lot to knowledge of ME/CFS through his studies, and is now conducting one on Abnormal Response to Physical and/or Cognitive Exertion in ME and CFS Patients. This is a longer and more in-depth survey, but Dr. Jason understands our limits and has designed it so that you can work on a bit at a time and save it to finish later.
You can do your part, right from your own couch or bed. Check out those two surveys today to help keep ME/CFS research moving forward!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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