This Saturday, September 29, 2018, the Open Medicine Foundation and Stanford University will hold their Second Annual ME/CFS Community Symposium, featuring top experts and doctors in the ME/CFS world, presenting updates on research, diagnosis, and treatment. Anyone, anywhere in the world, can join in via Livestream. Details and registration for Livestream are at the link.
The Working Group already began meeting on Wednesday - 50 top experts from all over the world discussing the latest research in ME/CFS! They will provide updates to patients and anyone else who wants to join on Saturday at the Community Symposium.
I will be away and offline this weekend - finally getting to go camping after 2 cancellations this summer! - so let me know what you hear! The entire thing will also be recorded and available on YouTube afterward (link also on the Symposium website above).
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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