Here's some exciting news announced in a recent press release: Dr. Suzanne Vernon and Dr. Lucinda Bateman are teaming up to develop specific diagnostic tools for ME/CFS. They will start with the newly written IOM diagnostic criteria (which Bateman helped to develop) and then test and refine and quantify that criteria, with the ultimate goal being to end up with diagnostic tools and tests that any mainstream doctor can use to diagnose ME/CFS/SEID.
Estimates from population studies indicate that anywhere from 80 - 90% of people with ME/CFS remain undiagnosed (which also means they are without proper treatment), and most mainstream medical professionals are unable to recognize ME/CFS in their patients. This expert team aims to change that!
Dr. Vernon has a PhD in Virology and previously served as the Scientific Director for the Solve ME/CFS Initiative where she directed many dozens of excellent research projects for all aspects of ME/CFS.
Dr. Lucinda Bateman is a well-respected ME/CFS researcher and clinician who has helped many thousands of patients for over 25 years.
Together, they are a powerful team with a much-needed objective. This is great news! Can you imagine a future where someone gets sick with ME/CFS, goes to their own primary care doctor and is accurately diagnosed right away instead of enduring years of visits to specialists without any answers? It's coming.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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