I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Friday, August 07, 2009
Update on Genetic Study
Just a quick update to let you know that the CFS genetic study that I wrote about earlier this week is still actively recruiting participants and all of the information I posted earlier is correct. One person had trouble when she called, but I have double-checked with the research assistant, and she has no idea why that was. In any case, the phone number and e-mail posted earlier are correct, and they need more participants. If you have any trouble with that contact information, you can also try e-mailing Caitlin Smith at cksmith@uic.edu. She's the research assistant for the study and also the person who answers the phone.
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3 comments:
That's so odd. I was told it was closed.
Thanks Sue…
I may try to do it!
Best, Martine
Anne -
You're not the only one - another reader was told the study was closed last week, too. Caitlin has no idea how this occurred - she's stumped - but she assures me they're still recruiting patients. Try her direct e-mail, as listed in this post.
Sue
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