I'm pretty beat today, but it was expected and worth it. I drove the boys and I yesterday to my cousin's house (90 minutes away) to visit his family and his sister (my other cousin) and her family who were visiting from North Carolina. We hadn't seen the NC group in four years, so it was great to see everyone, and the boys had a blast playing with all their cousins and getting reacquainted.
So, I'm a day late on the weekly quote, and I actually planned one that was a bit more positive, but this is how I felt this morning:
I used to look forward to every day. Now I wake up totally exhausted and think, "Oh, shit, I'm awake."That is one of many patient quotes Katrina included in her chapter, Overwhelmed and Uncertain: The Effects of CFS and FM. I highly recommend this book. I bought it shortly after being diagnosed with CFS and have read it cover-to-cover several times and still refer to it often. It's a very thorough explanation of the physiology behind CFS, how it's diagnosed, what treatments are available for various symptoms, plus very in-depth coverage of the emotional aspects of living with CFS. When my mother was struggling to understand how CFS affected me, I copied that entire Overwhelmed and Uncertain chapter and sent it to her to read. This book was a real lifesaver for me at a time when I was desperate for information. It was published in 2001, so it's not completely up-to-date in terms of the latest research, but it was very thorough at the time and still provides an excellent overview for understanding CFS, especially for those who are newly diagnosed.
- CFS patient quote from the book Chronic Fatigue Syndrome, Fibromyalgia, and Other Invisible Illnesses: The Comprehensive Guide by Katrina Berne, PhD