I hope everyone had a nice holiday season. Our holidays were good but filled with unexpected challenges. I'm very glad to be back home and am looking forward to getting back to my own routines (though the next couple of weeks will still be very un-routine).
We were enjoying a nice Christmas Eve - dinner out with the kids, candlelight church service, and a neighbor's open house - when my husband, Ken, mentioned that he was seeing spots in his left eye. I didn't think it was anything serious, but it got worse on Christmas Day (not an ideal time to seek medical assistance!). By the next morning, he was really scared, and, after looking up his symptoms online, I was, too. WebMD basically said, "Seek medical care immediately." We finally found an ophthalmologist who was open on the Saturday after Christmas, and I drove him over to the office.
The doctor examined Ken's eye and said he had a tear in his retina and that he needed surgery immediately. He made some calls for us, and at 7 am Sunday morning, I drove Ken to Philadelphia for emergency laser eye surgery. The eye institute was closed - the surgeon, a resident, and Ken and I were the only ones there! Fortunately, the doctor was able to repair the tear with a laser (conventional surgery would have been much more risky), and he gave us the OK to keep our travel reservations for the next morning. Besides being scared about Ken's eye, we were terrified that we'd have to cancel our trip and would lose the very large sum of money we'd paid for the tickets and couldn't really afford in the first place. I told Ken I never would have guessed that, of the four of us, he might be the reason we'd have to cancel a trip! Thankfully, it all worked out, though Ken's vision is still impaired because of blood in the eye; the doctor said it could take weeks to clear completely.
We left for Oklahoma the next morning to see Ken's parents, completely skipping the quiet, relaxing days we'd anticipated at home! Our flights went OK, but our bags didn't arrive until 24 hours later (by which time we were all desperate for our toothbrushes and clean clothes). Our visit was difficult. Ken's mom, who has advanced Parkinson's disease and is in a nursing home, was much worse than when we visited this summer. Her limbs are stiff and almost completely immobile now, and it's almost impossible to understand her when she talks (both common symptoms of Parkinson's). His dad has severe spinal stenosis and is having trouble even walking up the driveway, though he still spends every single day at the nursing home.
It's very difficult to live so far away and only be able to visit every six months. I keep feeling like we should DO something, but moving us out there or somehow moving them here both seem impossible. It was very hard to leave them.
Despite all these extra challenges, we did have a nice Christmas and New Year's. On New Year's Eve (a quiet tradition on our Oklahoma visits, where we celebrate the new year at 6 pm before Ken's mom goes back to the nursing home for the night), I was suddenly struck, as I often am, by just how wonderful our two sons are. They're both incredibly kind, caring, and lots of fun! I just feel so fortunate to have them in my life (and my husband, too!). People always say when things go wrong, "at least you have your health," but even without good health, we still have each other. There is nothing more important in life than good, loving relationships with people you care about.
Here's to a happy and healthy New Year with the people you love!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Sunday, January 03, 2010
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9 comments:
Good grief, Sue! What a lot of stress for all of you with your husband's surgery. What a blessing to find the doctors you needed during the holidays. What a blessing to have the laser surgery work and all going well. Lots of gratefulness all around I am sure.
It must be so difficult to be so far away from Ken's parents when they health is so poor right now.
God bless you and them.
Thank you, Renee. Yes, we are very, very grateful that things have worked out OK with Ken's eye and for the two wonderful doctors who helped us on the holiday weekend. What a freak thing to happen! The surgeon said a retinal tear can easily lead to a detached retina which can cause blindness, so we feel very fortunate to have caught it early.
Sue
Sue - I'm glad that everything worked out alright for Ken, and I'm sorry that your in-laws aren't closer: I know how hard it is to leave the people you love.
Also? That "at least you have your health" bit is one of the most frustrating things - I don't have it.... lots of people don't have it: it doesn't mean we have nothing.
What a holiday story, Sue. I'm so glad that you were fortunate to find two good and kind doctors. Whew!
Thanks for reminding me that despite the societal mantra, "your health is all," it's our families (or whoever sticks with us despite our diminished health) who "are all." I'll keep that thought with me in 2010.
Wow! Sounds like a nightmare. It's bad enough coping with situations like that when you are fit and healthy. I agree with you, it's the strength of the relationships that keep us whole. I'm sure your sons will take that with them into their future lives.
Happy new year to you too Sue.
I was finally able to read enough to see your post and Terri's today and my gosh. It really is scary to have that happen, especially over a holiday weekend when doctors arre scarce.
So much has been going on with that scare and with family.
Know you stay in my thoughts.
Wow, you have a lot on your hands- how do you cope?!
I hope you don't mind me following you- I've just started my own blog.I'm just reading your CFS article over on blisstree & it's funny-the feeling you described when you first got ill was exactly how I felt(I had Glandular Fever)! You have a lovely writing style- really easy to follow.
It's true about what you say about relationships- the good ones will stick by and love you now matter what.
Dear Forgetful Girl -
Welcome to my blog! I'm glad you've found my writing on CFS helpful, and I look forward to checking out your new blog.
Thanks for taking the time to comment - you'll find a wonderful and supportive group of CFS bloggers online!
Sue
Oh my goodness! What a journey you all have been on! Thank goodness Ken's eye got taken care of immediately. Thank goodness for WebMD, the doctor's etc...
I hope you get some good rest time in with everything that is going on and coming up.
Happy New Year to you and your family...
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