Back in March (how can it possibly be May already?), the annual International IACFS/ME Conference was held in San Francisco. I wasn't able to attend the conference, but I came across this wonderful summary that I wanted to share with you.
In this 51 minute video, Dr. Anthony Komaroff, a renowned ME/CFS specialist, summarized the main ideas from all of the biological research talks presented at the conference. It provides a great overview not only of the conference, but of the cutting-edge of ME/CFS science research right now. Even if you don't understand some of the technical points he covers here, I think you will find the scope and breadth of the research being done truly astonishing. There are many doctors dedicated to digging into the physiology of our crazy illness, and it gives me a lot of reasons to be hopeful for a better future for ME/CFS patients!
I've really fallen behind in keeping up with this sort of thing lately, so if anyone has any other resources or links to share from this conference or other sources, I'd love to hear about them.
Remember that you can now follow Learning to Live with ME/CFS on Twitter and on Facebook!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
2 comments:
Hi Sue,
I've been reading your blog for a while now and I want to take a minute to thank you. Reading your posts has been educational, and comforting. You make me feel like I'm not alone, and hopeful. I give you a big hug and once again thank you for all you've done for the CFS community around the world.
Wendy from Canada.
Thank you, Wendy, for the kind words and for taking the time to leave a comment. It's a lot of work for me to keep up the blog, and it really helps me to know someone out there is listening and maybe benefitting - makes ME feel like I'm not alone!
Thanks - you made my day!
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