Friday, September 10, 2010

CFS In the News Again!

Saw a couple of interesting articles on CFS in the mainstream news this week - a good sign that word is beginning to spread to the public and the broad medical community that CFS is a serious illness that deserves attention!
So, good news coverage - finally!  We deserve some attention after all these years of being ignored.

It's been a busy week here - we're all still trying to adjust to the early mornings and hectic evenings of the new school year.  I'm doing OK, a bit better than last week.  Looking forward to the weekend!

5 comments:

  1. Thanks for the links Sue. I've been following this news as well. I feel like I'm holding my breath all the time really hoping it all works out well for those of us with CFS and more important, translates into tests and treatments.

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  2. Anonymous1:21 PM

    Thanks for the info!

    Take care and have a great (relaxing?!) weekend. :D

    D.

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  3. In the LDN article it states, "The bottom line, according to Hardiman, is that personal testimony does not equate to good science, and there is no scientific evidence for Naltrexone having any effectiveness in treating disease, either in the laboratory or clinical setting."

    But that's not true. I know of at least one study showing it's effectiveness in helping Fibormylagia symptoms, carried out by scientists at Stanford no less: http://snapl.stanford.edu/research/ldn.html

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  4. I was dx with CFIDS after my bout with mono as a teen, too, so that article was particularly interesting to me - if only to know that they're actually paying attention to the patterns so many of us had already seen. Thanks Sue - hope you're having a wonderful weekend.

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  5. David -

    Yes, there's no question that the person quoted in the LDN article knew absolutely nothing about LDN and didn't even bother to look into it before being interviewed for the article. There have in fact been about a dozen studies, all showing amazing results, especially with autoimmune diseases like Crohn's and Ulcerative Colitis. You can read about them at www.lowdosenaltrexone.org

    Sue

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