- An article from Ireland about the use of low-dose naltrexone for a wide variety of immune system disorders, including CFS. Unfortunately, there is a high-level UK health "expert" quoted here guessing that LDN is all about placebo effect, but hopefully the news coverage will help spread the word. Here's the latest update on my own use of low-dose naltrexone.
- A Los Angeles Times article about research into CFS in teens, following mononucleosis - mostly accurate, emphasizes that CFS causes debilitation in teens, plus an interesting statistic that 50% of teens who developed CFS after mono recovered within 2 years (hear that, Laura?)
- And a whole slew of news stories about a CFS-virus link in kids in the UK this week - about time, British friends, right? Here's one of the articles, from the BBC.
It's been a busy week here - we're all still trying to adjust to the early mornings and hectic evenings of the new school year. I'm doing OK, a bit better than last week. Looking forward to the weekend!
5 comments:
Thanks for the links Sue. I've been following this news as well. I feel like I'm holding my breath all the time really hoping it all works out well for those of us with CFS and more important, translates into tests and treatments.
Thanks for the info!
Take care and have a great (relaxing?!) weekend. :D
D.
In the LDN article it states, "The bottom line, according to Hardiman, is that personal testimony does not equate to good science, and there is no scientific evidence for Naltrexone having any effectiveness in treating disease, either in the laboratory or clinical setting."
But that's not true. I know of at least one study showing it's effectiveness in helping Fibormylagia symptoms, carried out by scientists at Stanford no less: http://snapl.stanford.edu/research/ldn.html
I was dx with CFIDS after my bout with mono as a teen, too, so that article was particularly interesting to me - if only to know that they're actually paying attention to the patterns so many of us had already seen. Thanks Sue - hope you're having a wonderful weekend.
David -
Yes, there's no question that the person quoted in the LDN article knew absolutely nothing about LDN and didn't even bother to look into it before being interviewed for the article. There have in fact been about a dozen studies, all showing amazing results, especially with autoimmune diseases like Crohn's and Ulcerative Colitis. You can read about them at www.lowdosenaltrexone.org
Sue
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